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An accessible, relational, inclusive, and actionable (ARIA) model of genetic counseling compared with usual care: Results of a randomized controlled trial.
Joseph, Galen; Leo, Michael C; Riddle, Leslie; Guerra, Claudia; Amendola, Laura M; Gilmore, Marian J; Rolf, Bradley A; Dorschner, Michael O; Zepp, Jamilyn; Biesecker, Barbara B; Caruncho, Mikaella; Hunter, Jessica Ezzell; Keast, Erin; Lewis, Hannah S; Duenas, Devan; Kauffman, Tia; Bulkley, Joanna E; Anderson, Katherine P; Jarvik, Gail P; Goddard, Katrina A B; Wilfond, Benjamin S.
Affiliation
  • Joseph G; Department of Humanities & Social Sciences, University of California San Francisco, San Francisco, CA; Helen Diller Family Comprehensive Cancer Center, University of California, San Francisco, CA. Electronic address: galen.joseph@ucsf.edu.
  • Leo MC; Kaiser Permanente Center for Health Research, Portland, OR.
  • Riddle L; Department of Humanities & Social Sciences, University of California San Francisco, San Francisco, CA.
  • Guerra C; Department of Humanities & Social Sciences, University of California San Francisco, San Francisco, CA.
  • Amendola LM; Division of Medical Genetics, Department of Medicine, University of Washington Medical Center, Seattle, WA.
  • Gilmore MJ; Department of Translational and Applied Genomics (TAG), Kaiser Permanente Center for Health Research, Portland, OR.
  • Rolf BA; Division of Medical Genetics, Department of Medicine, University of Washington Medical Center, Seattle, WA.
  • Dorschner MO; Department of Pathology, University of Washington Medical Center, University of Washington, Seattle, WA.
  • Zepp J; Department of Translational and Applied Genomics (TAG), Kaiser Permanente Center for Health Research, Portland, OR.
  • Biesecker BB; Genomics, Ethics, and Translational Research Program, RTI International, Research Triangle Park, NC.
  • Caruncho M; Department of Humanities & Social Sciences, University of California San Francisco, San Francisco, CA.
  • Hunter JE; Genomics, Ethics, and Translational Research Program, RTI International, Research Triangle Park, NC.
  • Keast E; Kaiser Permanente Center for Health Research, Portland, OR.
  • Lewis HS; Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital, Seattle, WA.
  • Duenas D; Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital, Seattle, WA.
  • Kauffman T; Kaiser Permanente Center for Health Research, Portland, OR.
  • Bulkley JE; Department of Translational and Applied Genomics (TAG), Kaiser Permanente Center for Health Research, Portland, OR.
  • Anderson KP; Department of Family Medicine, Ambulatory Care Services, Denver Health, Denver, CO.
  • Jarvik GP; Division of Medical Genetics, Department of Medicine, University of Washington Medical Center, Seattle, WA; Department Genome Sciences, University of Washington Medical Center, University of Washington, Seattle, WA.
  • Goddard KAB; Department of Translational and Applied Genomics (TAG), Kaiser Permanente Center for Health Research, Portland, OR.
  • Wilfond BS; Genomics, Ethics, and Translational Research Program, RTI International, Research Triangle Park, NC; Department of Pediatrics, University of Washington School of Medicine, University of Washington, Seattle, WA.
Genet Med ; 24(11): 2228-2239, 2022 11.
Article in En | MEDLINE | ID: mdl-36053287
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Communication / Health Literacy / Genetic Counseling Type of study: Clinical_trials / Prognostic_studies / Qualitative_research Limits: Humans Language: En Journal: Genet Med Journal subject: GENETICA MEDICA Year: 2022 Document type: Article Country of publication: United States
Fulltext
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Communication / Health Literacy / Genetic Counseling Type of study: Clinical_trials / Prognostic_studies / Qualitative_research Limits: Humans Language: En Journal: Genet Med Journal subject: GENETICA MEDICA Year: 2022 Document type: Article Country of publication: United States