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An iterative and interdisciplinary categorisation process towards FAIRer digital resources for sensitive life-sciences data.
David, Romain; Ohmann, Christian; Boiten, Jan-Willem; Abadía, Mónica Cano; Bietrix, Florence; Canham, Steve; Chiusano, Maria Luisa; Dastrù, Walter; Laroquette, Arnaud; Longo, Dario; Mayrhofer, Michaela Th; Panagiotopoulou, Maria; Richard, Audrey S; Goryanin, Sergey; Verde, Pablo Emilio.
Affiliation
  • David R; European Research Infrastructure on Highly Pathogenic Agents (ERINHA), 1050, Brussels, Belgium.
  • Ohmann C; European Clinical Research Infrastructure Network (ECRIN), 75013, Paris, France. christianohmann@outlook.de.
  • Boiten JW; European Clinical Research Infrastructures Network (ECRIN), Kaiserswerther Strasse 70, 40477, Düsseldorf, Germany. christianohmann@outlook.de.
  • Abadía MC; European Advanced Translational Research Infrastructure (EATRIS)/Lygature, 3521 AL, Utrecht, The Netherlands.
  • Bietrix F; Biobanking and Biomolecular Resources Research Infrastructure (BBMRI-ERIC), 8010, Graz, Austria.
  • Canham S; European Infrastructure for Translational Medicine (EATRIS), 1081 HZ, Amsterdam, The Netherlands.
  • Chiusano ML; European Clinical Research Infrastructure Network (ECRIN), 75013, Paris, France.
  • Dastrù W; European Marine Biological Resource Centre (EMBRC), University Federico II of Naples and Stazione Zoologica Anton Dohrn, 80138, Naples, Italy.
  • Laroquette A; Department of Molecular Biotechnology and Health Sciences, Molecular Imaging Center, University of Torino, 10125, Torino, Italy.
  • Longo D; European Marine Biological Resource Centre (EMBRC), 75252, Paris, France.
  • Mayrhofer MT; European Research Infrastructure for Biological and Biomedical Imaging (Euro-Bioimaging), Institute of Biostructures and Bioimaging. National Research Council of Italy (CNR), 10126, Torino, Italy.
  • Panagiotopoulou M; Biobanking and Biomolecular Resources Research Infrastructure (BBMRI-ERIC), 8010, Graz, Austria.
  • Richard AS; European Clinical Research Infrastructure Network (ECRIN), 75013, Paris, France.
  • Goryanin S; European Research Infrastructure on Highly Pathogenic Agents (ERINHA), 1050, Brussels, Belgium.
  • Verde PE; European Clinical Research Infrastructure Network (ECRIN), 75013, Paris, France.
Sci Rep ; 12(1): 20989, 2022 12 05.
Article in En | MEDLINE | ID: mdl-36470968
For life science infrastructures, sensitive data generate an additional layer of complexity. Cross-domain categorisation and discovery of digital resources related to sensitive data presents major interoperability challenges. To support this FAIRification process, a toolbox demonstrator aiming at support for discovery of digital objects related to sensitive data (e.g., regulations, guidelines, best practice, tools) has been developed. The toolbox is based upon a categorisation system developed and harmonised across a cluster of 6 life science research infrastructures. Three different versions were built, tested by subsequent pilot studies, finally leading to a system with 7 main categories (sensitive data type, resource type, research field, data type, stage in data sharing life cycle, geographical scope, specific topics). 109 resources attached with the tags in pilot study 3 were used as the initial content for the toolbox demonstrator, a software tool allowing searching of digital objects linked to sensitive data with filtering based upon the categorisation system. Important next steps are a broad evaluation of the usability and user-friendliness of the toolbox, extension to more resources, broader adoption by different life-science communities, and a long-term vision for maintenance and sustainability.
Subject(s)

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Software / Biological Science Disciplines Type of study: Diagnostic_studies / Guideline Language: En Journal: Sci Rep Year: 2022 Document type: Article Affiliation country: Belgium Country of publication: United kingdom

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Software / Biological Science Disciplines Type of study: Diagnostic_studies / Guideline Language: En Journal: Sci Rep Year: 2022 Document type: Article Affiliation country: Belgium Country of publication: United kingdom