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Key4OI Recommendations for Lung Function Guidance in Osteogenesis Imperfecta: Based on an Internationally Performed Comprehensive International Consortium for Health Outcomes Measurement Procedure.
Chaney, Hollis; Mekking, Dagmar; De Bakker, Danielle; Beeri, Eliezer; Eekhoff, E Marelise W; Franken, Anton; Kamp, Otto; Micha, Dimitra; Barreiros, Céu; Tomlow, Ben; van den Aardweg, Joost G; LoMauro, Antonella; Folkestad, Lars.
Affiliation
  • Chaney H; Department of Pediatrics, George Washington University School of Medicine and Health Sciences, Washington, DC; Division of Pulmonary and Sleep Medicine, Children's National Hospital, Washington, DC.
  • Mekking D; Care4BrittleBones Foundation, Wassenaar, The Netherlands. Electronic address: dagmar.mekking@care4brittlebones.org.
  • De Bakker D; Department of Stem Cell Biology and Regenerative Medicine, Eli and Edythe Broad CIRM Center for Regenerative Medicine and Stem Cell Research, W. M. Keck School of Medicine, University of Southern California, Los Angeles, CA.
  • Beeri E; Respiratory Rehabilitation Unit, ALYN Hospital, Jerusalem, Israel.
  • Eekhoff EMW; Department of Internal Medicine, Section Endocrinology, Amsterdam University Medical Center, Amsterdam Rare Bone Disease Center/Amsterdam Bone Center, Amsterdam, The Netherlands.
  • Franken A; Department of Internal Medicine, Isala Klinieken, Zwolle, The Netherlands.
  • Kamp O; Department of Cardiology, Amsterdam University Medical Center, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.
  • Micha D; Department of Human Genetics, Amsterdam Movement Sciences, Amsterdam Rare Bone Disease/Amsterdam Bone Center, Amsterdam University Medical Center, location VUmc, Amsterdam, The Netherlands.
  • Barreiros C; Hospital Santa Maria, Lisbon, Portugal.
  • Tomlow B; Department of Pulmonary Medicine, Isala Klinieken, Zwolle, The Netherlands.
  • van den Aardweg JG; Department of Respiratory Medicine, Amsterdam University Medical Centers, Academic Medical Center, Amsterdam, The Netherlands.
  • LoMauro A; Dipartimento di Elettronica, Informazione e Bioingegneria, Politecnico di Milano, Milan, Italy.
  • Folkestad L; Department of Endocrinology, Odense University Hospital, Odense, Denmark; Department of Clinical Research, University of Southern Denmark, Odense, Denmark.
Chest ; 163(5): 1201-1213, 2023 05.
Article in En | MEDLINE | ID: mdl-36640996

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Osteogenesis Imperfecta Type of study: Diagnostic_studies / Guideline / Qualitative_research Aspects: Patient_preference Limits: Adult / Humans Language: En Journal: Chest Year: 2023 Document type: Article Country of publication: United States

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Osteogenesis Imperfecta Type of study: Diagnostic_studies / Guideline / Qualitative_research Aspects: Patient_preference Limits: Adult / Humans Language: En Journal: Chest Year: 2023 Document type: Article Country of publication: United States