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Creating a population-based cohort of children born with and without congenital anomalies using birth data matched to hospital discharge databases in 11 European regions: Assessment of linkage success and data quality.
Loane, Maria; Given, Joanne E; Tan, Joachim; Barisic, Ingeborg; Barrachina-Bonet, Laia; Cavero-Carbonell, Clara; Coi, Alessio; Densem, James; Garne, Ester; Gissler, Mika; Heino, Anna; Jordan, Sue; Lutke, Renee; Neville, Amanda J; Odak, Ljubica; Puccini, Aurora; Santoro, Michele; Scanlon, Ieuan; Urhoj, Stine K; de Walle, Hermien E K; Wellesley, Diana; Morris, Joan K.
Affiliation
  • Loane M; Faculty of Life and Health Sciences, Ulster University, Belfast, Northern Ireland, United Kingdom.
  • Given JE; Faculty of Life and Health Sciences, Ulster University, Belfast, Northern Ireland, United Kingdom.
  • Tan J; Population Health Research Institute, St George's University of London, London, United Kingdom.
  • Barisic I; Children's Hospital Zagreb, Centre of Excellence for Reproductive and Regenerative Medicine, Medical School University of Zagreb, Zagreb, Croatia.
  • Barrachina-Bonet L; Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain.
  • Cavero-Carbonell C; Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain.
  • Coi A; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, Pisa, Italy.
  • Densem J; Biomedical Computing Limited, Battle, United Kingdom.
  • Garne E; Department of Paediatrics and Adolescent Medicine, Lillebaelt Hospital, University Hospital of Southern Denmark, Kolding, Denmark.
  • Gissler M; Department of Knowledge Brokers, THL Finnish Institute for Health and Welfare, Helsinki, Finland.
  • Heino A; Department of Knowledge Brokers, THL Finnish Institute for Health and Welfare, Helsinki, Finland.
  • Jordan S; Faculty of Medicine, Health and Life Sciences, Swansea University, Swansea, Wales, United Kingdom.
  • Lutke R; Department of Genetics, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
  • Neville AJ; Emilia Romagna Registry of Birth Defects, Center for Clinical and Epidemiological Research, University of Ferrara, Azienda Ospedaliero- Universitaria di Ferrara, Ferrara, Italy.
  • Odak L; Children's Hospital Zagreb, Centre of Excellence for Reproductive and Regenerative Medicine, Medical School University of Zagreb, Zagreb, Croatia.
  • Puccini A; Territorial Care Service, Emilia Romagna Health Authority Bologna, Bologna, Italy.
  • Santoro M; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, Pisa, Italy.
  • Scanlon I; Public Health Wales, Swansea, United Kingdom.
  • Urhoj SK; Section of Epidemiology, University of Copenhagen, Copenhagen, Denmark.
  • de Walle HEK; Department of Genetics, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
  • Wellesley D; Wessex Clinical Genetics Service, Princess Anne Hospital, Southampton, United Kingdom.
  • Morris JK; Population Health Research Institute, St George's University of London, London, United Kingdom.
PLoS One ; 18(8): e0290711, 2023.
Article in En | MEDLINE | ID: mdl-37647348
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Patient Discharge / Data Accuracy Type of study: Prognostic_studies / Risk_factors_studies Limits: Adolescent / Child / Female / Humans / Newborn / Pregnancy Language: En Journal: PLoS One Journal subject: CIENCIA / MEDICINA Year: 2023 Document type: Article Affiliation country: United kingdom
Fulltext
Add to My VHL
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Patient Discharge / Data Accuracy Type of study: Prognostic_studies / Risk_factors_studies Limits: Adolescent / Child / Female / Humans / Newborn / Pregnancy Language: En Journal: PLoS One Journal subject: CIENCIA / MEDICINA Year: 2023 Document type: Article Affiliation country: United kingdom