Kawasaki disease: patients' transition journey and recommendations for adult care.
Cardiol Young
; 34(4): 793-802, 2024 Apr.
Article
in En
| MEDLINE
| ID: mdl-37830370
ABSTRACT
BACKGROUND:
Children who develop coronary artery aneurysms after Kawasaki disease are at risk for cardiovascular morbidity, requiring health care transition and lifelong follow-up with an adult specialist. Follow-up losses after health care transition have been reported but without outcome and patient experience evaluation.OBJECTIVE:
The Theoretical Domains Framework underpinned our aim to explore the required self-care behaviours and experiences of young adults' post-health care transition.METHODS:
A qualitative description approach was used for virtual, 11 interviews with 11 participants, recruited after health care transition from a regional cardiac centre in Ontario. Directed content analysis was employed.RESULTS:
Health, psychosocial, and lifestyle challenges were compounded by a sense of loss. Six themes emerged within the Theoretical Domains Framework categories. Participants offered novel health care transition programme recommendations.CONCLUSIONS:
The realities of health care transition involve multiple, overlapping stressors for young adults with Kawasaki disease and coronary artery aneurysms. Our findings will inform a renewed health care transition programme and will include outcome evaluation.Key words
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Coronary Aneurysm
/
Transition to Adult Care
/
Mucocutaneous Lymph Node Syndrome
Limits:
Adult
/
Child
/
Humans
Country/Region as subject:
America do norte
Language:
En
Journal:
Cardiol Young
Journal subject:
ANGIOLOGIA
/
CARDIOLOGIA
/
PEDIATRIA
Year:
2024
Document type:
Article
Affiliation country:
Canada