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Development of the 'ACT now & check-it-out' intervention to support patient-initiated follow up for Head and Neck cancer patients.
Matheson, Lauren; Greaves, Colin; Duda, Joan L; Wells, Mary; Secher, Denis; Rhodes, Pat; Lorenc, Ava; Jepson, Marcus; Ozakinci, Gozde; Watson, Eila; Fulton-Lieuw, Tessa; Mittal, Saloni; Main, Barry; Nankivell, Paul; Mehanna, Hisham; Brett, Jo.
Affiliation
  • Matheson L; Oxford Institute of Nursing, Midwifery and Allied Health Research, Oxford Brookes University, OX3 0FL Oxford, UK. Electronic address: l.matheson@brookes.ac.uk.
  • Greaves C; School of Sport, Exercise and Rehabilitation Sciences, University of Birmingham, Birmingham B15 2TT, UK. Electronic address: c.j.greaves@bham.ac.uk.
  • Duda JL; School of Sport, Exercise and Rehabilitation Sciences, University of Birmingham, Birmingham B15 2TT, UK. Electronic address: j.l.duda@bham.ac.uk.
  • Wells M; Nursing Directorate, Imperial College Healthcare NHS Trust, Charing Cross Hospital, London W6 8RF, UK. Electronic address: mary.wells5@nhs.net.
  • Secher D; Patient Representatives, UK. Electronic address: denis.secher@gmail.com.
  • Rhodes P; Patient Representatives, UK. Electronic address: patmrhodes@gmail.com.
  • Lorenc A; Population Health Sciences, Bristol Medical School, University of Bristol, Bristol BS8 2PS, UK. Electronic address: ava.lorenc@bristol.ac.uk.
  • Jepson M; Population Health Sciences, Bristol Medical School, University of Bristol, Bristol BS8 2PS, UK. Electronic address: Marcus.jepson@bristol.ac.uk.
  • Ozakinci G; Division of Psychology, University of Stirling, Stirling FK9 4LA, UK. Electronic address: gozde.ozakinci@stir.ac.uk.
  • Watson E; Oxford Institute of Nursing, Midwifery and Allied Health Research, Oxford Brookes University, OX3 0FL Oxford, UK. Electronic address: ewatson@brookes.ac.uk.
  • Fulton-Lieuw T; Institute of Head and Neck Studies and Education (InHANSE), Institute of Cancer and Genomic Sciences, University of Birmingham, Birmingham B15 2TT, UK. Electronic address: m.t.fulton-lieuw@bham.ac.uk.
  • Mittal S; Institute of Head and Neck Studies and Education (InHANSE), Institute of Cancer and Genomic Sciences, University of Birmingham, Birmingham B15 2TT, UK. Electronic address: s.mittal.2@bham.ac.uk.
  • Main B; Bristol Dental School, University of Bristol, BS1 2LY, UK. Electronic address: b.g.main@bristol.ac.uk.
  • Nankivell P; Institute of Head and Neck Studies and Education (InHANSE), Institute of Cancer and Genomic Sciences, University of Birmingham, Birmingham B15 2TT, UK. Electronic address: p.c.nankivell@bham.ac.uk.
  • Mehanna H; Institute of Head and Neck Studies and Education (InHANSE), Institute of Cancer and Genomic Sciences, University of Birmingham, Birmingham B15 2TT, UK. Electronic address: h.mehanna@bham.ac.uk.
  • Brett J; Oxford Institute of Nursing, Midwifery and Allied Health Research, Oxford Brookes University, OX3 0FL Oxford, UK. Electronic address: jbrett@brookes.ac.uk.
Patient Educ Couns ; 119: 108033, 2024 Feb.
Article in En | MEDLINE | ID: mdl-37988772
ABSTRACT

OBJECTIVE:

Current Head and Neck cancer (HNC) follow-up models are considered sub-optimal at detecting recurrences. We describe the development of a patient-initiated follow up (PIFU) trial intervention support package, to support HNC patients to engage in PIFU self-care behaviors.

METHODS:

An intervention mapping approach, informed by evidence synthesis, theory and stakeholder consultation, guided intervention development. Data sources included a patient survey (n = 144), patient interviews (n = 30), 7 workshops with patients (n = 25) and caregivers (n = 3) and 5 workshops with health professionals (n = 21).

RESULTS:

The intervention ('ACT now & check-it-out') comprises an education and support session with a health professional and an app and/or a booklet for patients. The main targets for change in patient self-care behaviors were assessing what is normal for them; regularly checking for symptom changes; prompt help-seeking for persistent/new symptoms; self-management of fear of recurrence; engaging with the intervention over time.

CONCLUSIONS:

We have developed an evidence, person and theory-based intervention to support PIFU self-care behaviors in HNC patients. PRACTICE IMPLICATIONS A trial is underway to assess the effectiveness and cost-effectiveness of the intervention. If successful, this intervention could be adapted for patients with other cancers or diseases, which is important given the recent shift towards PIFU pathways.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Self-Management / Head and Neck Neoplasms Limits: Humans Language: En Journal: Patient Educ Couns Year: 2024 Document type: Article
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Self-Management / Head and Neck Neoplasms Limits: Humans Language: En Journal: Patient Educ Couns Year: 2024 Document type: Article