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CONNECTing Concussion Care with Research Across Ontario.
Hunt, Cindy; MacKenzie, Heather; Dosaj, Anil; Zych, Justina; Tartaglia, Carmela; Bayley, Mark; Wilcock, Ruth; Zabjek, Karl; Burke, Matthew; Kristman, Vicki; Hardy, Billie; Fischer, Lisa K; Baker, Andrew.
Affiliation
  • Hunt C; Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.
  • MacKenzie H; Head Injury Clinic, St. Michael's Hospital, Toronto, ON, Canada.
  • Dosaj A; Department of Physical Medicine and Rehabilitation, Parkwood Institute, London, ON, Canada.
  • Zych J; Schulich School of Medicine & Dentistry, Western University, London, ON, Canada.
  • Tartaglia C; Head Injury Clinic, St. Michael's Hospital, Toronto, ON, Canada.
  • Bayley M; Head Injury Clinic, St. Michael's Hospital, Toronto, ON, Canada.
  • Wilcock R; Canadian Concussion Centre, Krembil Brain Institute, Toronto Western Hospital, Toronto, ON, Canada.
  • Zabjek K; Tanz Centre for Research in Neurodegenerative Diseases, University of Toronto, Toronto, ON, Canada.
  • Burke M; Brain and Spinal Cord Rehab Program, Toronto Rehabilitation Institute - University Health Network, Toronto Hull Ellis Concussion & Research Clinic, Toronto Rehabilitation Institute, Toronto, ON, Canada.
  • Kristman V; Ontario Brain Injury Association, Thorold, ON, Canada.
  • Hardy B; Department of Physical Therapy, University of Toronto, Toronto, ON, Canada.
  • Fischer LK; KITE Research Institute, University Health Network, Toronto, ON, Canada.
  • Baker A; Department of Psychiatry, Sunnybrook Health Sciences Center, Toronto, ON, Canada.
Can J Neurol Sci ; : 1-5, 2024 Jan 18.
Article in En | MEDLINE | ID: mdl-38232957
ABSTRACT
Common data elements (CDEs) for concussion, as established by international bodies, are not being widely used in Ontario, resulting in significant variability in the data being assessed and collected across clinics. CDEs support standardization of care as well as large-scale data sharing for high impact research. A collaborative network - Concussion Ontario Network Neuroinformatics to Enhance Clinical care and Translation (CONNECT) - comprised of health care professionals, researchers, members from advocacy groups, and patients was formed to establish and implement CDEs for concussion care and research. While the seeds have been planted and initial effectiveness demonstrated, future challenges exist.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Language: En Journal: Can J Neurol Sci Year: 2024 Document type: Article Affiliation country: Canada
Fulltext
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Full text: 1 Collection: 01-internacional Database: MEDLINE Language: En Journal: Can J Neurol Sci Year: 2024 Document type: Article Affiliation country: Canada