'Fear, uncertain, tired
...' psychological distress among pulmonary hypertension patients: a qualitative interview study.
BMC Psychiatry
; 24(1): 100, 2024 Feb 05.
Article
in En
| MEDLINE
| ID: mdl-38317081
ABSTRACT
BACKGROUND:
Patient-centered health care for patients with pulmonary hypertension (PH) is important and requires an understanding of patient experiences. However, there is a lack of approaches to examine what's the effects and how the disease impact patients' psychological well-beings.METHODS:
We conducted qualitative interviews with PH patient representatives to understand patient psychological experiences and inform patient-centered research and care. Participants were chosen from a tertiary hospital located in northwest China. 20 patients with PH who be treated at the hospital (13 participants were women, aged 18-74 years) were strategically selected and individually interviewed. We used qualitative analysis to identify themes relating to existential psychological distress that would clarify the nature of such concerns.RESULTS:
We found that patients experience tremendous psychological distress throughout the treatment process. Four categories that describe patients' psychological experiences emerged burden of PH treatment, fear and uncertainty about the disease, frustration in social and family role, and lack of recognition of the condition.CONCLUSIONS:
Existential concerns are salient in PH and involve the experience of loss and disruptions to the sense of self and relationships. Healthcare practitioners must work more in collaboration to detect patients' need for support and to develop the patient's own skills to manage daily life. The PH teams should tailor interventions to provide emotional, informational and instrumental support and guidance to patients.Key words
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Psychological Distress
/
Hypertension, Pulmonary
Type of study:
Guideline
/
Qualitative_research
Limits:
Female
/
Humans
/
Male
Language:
En
Journal:
BMC Psychiatry
Journal subject:
PSIQUIATRIA
Year:
2024
Document type:
Article
Affiliation country:
China
Country of publication:
United kingdom