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Protocol for the Development and Initial Validation of the COG-IMPACT Tool: A Purpose-Built Unmet Needs Assessment for Cancer-Related Cognitive Impairment.
Haywood, Darren; O'Connor, Moira; Baughman, Frank D; Chan, Alexandre; Chan, Raymond J; Dauer, Evan; Dhillon, Haryana M; Henneghan, Ashley M; Lawrence, Blake J; Lustberg, Maryam; Vardy, Janette L; Rossell, Susan L; Hart, Nicolas H.
Affiliation
  • Haywood D; Human Performance Research Centre, INSIGHT Research Institute, Faculty of Health, University of Technology Sydney (UTS), Moore Park, NSW 2021, Australia.
  • O'Connor M; Department of Mental Health, St Vincent's Hospital Melbourne, Fitzroy, VIC 3065, Australia.
  • Baughman FD; Department of Psychiatry, Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, Parkville, VIC 3010, Australia.
  • Chan A; School of Population Health, Curtin University, Bentley, WA 6102, Australia.
  • Chan RJ; School of Population Health, Curtin University, Bentley, WA 6102, Australia.
  • Dauer E; School of Population Health, Curtin University, Bentley, WA 6102, Australia.
  • Dhillon HM; School of Pharmacy and Pharmaceutical Sciences, University of California, Irvine, CA 92619, USA.
  • Henneghan AM; School of Nursing, Queensland University of Technology (QUT), Kelvin Grove, Brisbane, QLD 4059, Australia.
  • Lawrence BJ; Cancer Care Services, Royal Brisbane and Women's Hospital, Herston, QLD 4006, Australia.
  • Lustberg M; Human Performance Research Centre, INSIGHT Research Institute, Faculty of Health, University of Technology Sydney (UTS), Moore Park, NSW 2021, Australia.
  • Vardy JL; Department of Mental Health, St Vincent's Hospital Melbourne, Fitzroy, VIC 3065, Australia.
  • Rossell SL; Faculty of Science, School of Psychology, Psycho-Oncology Cooperative Research Group, The University of Sydney, Sydney, NSW 2006, Australia.
  • Hart NH; Centre for Medical Psychology & Evidence-Based Decision-Making, Sydney, NSW 2006, Australia.
Methods Protoc ; 7(4)2024 Jul 10.
Article in En | MEDLINE | ID: mdl-39051268
ABSTRACT
(1)

Background:

A significant proportion of cancer survivors report experiencing a cognitive 'fog' that affects their ability to think coherently and quickly, and reason with clarity. This has been referred to as cancer-related cognitive impairment (CRCI). CRCI has extensive impacts on the daily lives of people living with or beyond cancer, including occupational, social, and psychological functioning. Oncology health professionals report feeling under-resourced to effectively assess the needs of an individual with CRCI and then provide optimal care and referral. (2)

Methods:

The objective of this project is to develop and provide an initial validation of the first purpose-built unmet needs assessment for CRCI the Unmet Needs Assessment of Cancer-Related Cognitive Impairment Impact (COG-IMPACT). We will use a multiple-stage, co-design, mixed-methods approach to develop and provide an initial validation of the COG-IMPACT. (3)

Results:

The primary anticipated result of this research is the production of the COG-IMPACT, the first purpose-built unmet needs assessment for CRCI. The assessment could be used by health professionals to understand the unmet needs and facilitate optimal care and referral for cancer survivors, by survivors to elucidate their supportive needs and advocate for their care, and by researchers to examine the correlates of unmet needs relating to CRCI, as well as how best to support people with CRCI.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Language: En Journal: Methods Protoc Year: 2024 Document type: Article Affiliation country: Australia Country of publication: Switzerland
Fulltext
Add to My VHL
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Full text: 1 Collection: 01-internacional Database: MEDLINE Language: En Journal: Methods Protoc Year: 2024 Document type: Article Affiliation country: Australia Country of publication: Switzerland