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Storytelling to support legacy making for bereaved parents of children with cancer.
Paul, Trisha K; Daniels, Sarah; Love, Amy; Hart, Katherine; Kaye, Erica C.
Affiliation
  • Paul TK; Division of Quality of Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.
  • Daniels S; Child Life and Music Therapy Program, Department of Psychosocial Services, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.
  • Love A; Child Life and Music Therapy Program, Department of Psychosocial Services, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.
  • Hart K; Child Life and Creative Arts Therapy Program, UC Davis Children's Hospital, Sacramento, California, USA.
  • Kaye EC; Division of Quality of Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.
Pediatr Blood Cancer ; 71(11): e31272, 2024 Nov.
Article in En | MEDLINE | ID: mdl-39138603
ABSTRACT
Honoring a child's legacy is an essential aspect of meaning-making for bereaved parents, yet little is known about storytelling as a mechanism. Through narrative analysis of 19 bereaved parent interviews focused on legacy, we examined the role of storytelling in creating and sustaining legacy. Most participants (89%) told stories centered around the child's impact and parent's coping, including the child's character and interpersonal relationships during and after their lifetime as well as how the child's legacy influenced parents' grief experiences. Future research is needed to explore the potential impact of storytelling initiatives to support legacy-making for bereaved caregivers.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Parents / Bereavement / Adaptation, Psychological / Neoplasms Limits: Adolescent / Adult / Child / Child, preschool / Female / Humans / Male / Middle aged Language: En Journal: Pediatr Blood Cancer Journal subject: HEMATOLOGIA / NEOPLASIAS / PEDIATRIA Year: 2024 Document type: Article Affiliation country: United States Country of publication: United States

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Parents / Bereavement / Adaptation, Psychological / Neoplasms Limits: Adolescent / Adult / Child / Child, preschool / Female / Humans / Male / Middle aged Language: En Journal: Pediatr Blood Cancer Journal subject: HEMATOLOGIA / NEOPLASIAS / PEDIATRIA Year: 2024 Document type: Article Affiliation country: United States Country of publication: United States