Quality of life in children with sickle cell disease in Amsterdam area
Ned Tijdschr Geneeskd
; 143(41): 2049-53, Oct. 9, 1999.
Article
in English
| MedCarib
| ID: med-759
Responsible library:
JM3.1
Localization: JM3.1
ABSTRACT
OBJECTIVE:
To determine the differences in quality of life between children with sickle cell disease and healthy immigrant children.DESIGN:
Descriptive, comparative.METHOD:
The quality of life of children with sickle cell disease between 5 and 15 years old being treated in the Emma Children's Hospital AMC in Amsterdam, the Netherlands, was assessed by using a questionnaire for parents (TNO-AZL Children's Quality of Life Questionnaire (TACQOL) parent form) if the child was between 8 and 15 years old. The study period was April-October 1998. The questionnaires were completed by 45 (parents of) patients. The results were compared with a healthy reference group of immigrant children. Statistical analysis was performed using the Student t-Test.RESULTS:
Children with sickle cell disease as well as their parents scored signifcantly lower on the items general physical, motor and independent daily functioning and on occurrence of negative emotions. No significance was observed for the items cognitive functioning and school performance nor for social functioning or occurrence of positive emotions.CONCLUSIONS:
In children, sickle cell disease leads to compromised physical and possibly also psychological wellbeing, as well as the experience of decreased independence in daily functioning, but not to compromised cognitive or social aspects of the quality of life. (AU)
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Collection:
International databases
Database:
MedCarib
Main subject:
Quality of Life
/
Beta-Thalassemia
/
Anemia, Sickle Cell
Type of study:
Observational study
/
Qualitative research
/
Risk factors
Aspects:
Patient-preference
Limits:
Adolescent
/
Child
/
Female
/
Humans
/
Male
Country/Region as subject:
Africa
/
South America
/
English Caribbean
/
Europa
/
Suriname
Language:
English
Journal:
Ned Tijdschr Geneeskd
Year:
1999
Document type:
Article