Clinical manifestations and quality of life in hidradenitis suppurativa patients: survey of participants from an internet support group
An. bras. dermatol
; 94(3): 298-303, May-June 2019. tab, graf
Artículo
en Inglés
| LILACS
| ID: biblio-1011122
Biblioteca responsable:
BR1.1
ABSTRACT
Abstract Background:
Hidradenitis suppurativa is a complex and infrequent autoinflammatory disease that impacts on quality of life. Its pathogenesis is not fully understood, which limits the development of curative treatments.Objectives:
To evaluate clinical and quality of life aspects of hidradenitis suppurativa patients from a social group on the Internet.Methods:
A cross-sectional, Internet-based survey study among participants in a discussion group (Facebook) of individuals with hidradenitis suppurativa. Patients were asked to answer a questionnaire about clinical-demographic aspects and quality of life (DLQI-BRA).Results:
A total of 390 individuals agreed to participate in the study, 82% of them female, median age (p25-p75), of 31 (25-37) years old, disease onset at 15 (13-23) years, family member affected in 20% of cases, overweight (BMI 29 [25-33]) kg/m2 and severe impact on quality of life (DLQI 20 [13-25]). Regarding Hurley's classification, the participants provided information that enabled classification into I (19%), II (52%) and III (29%). More severe cases were associated with males (OR = 1.69), higher weight (BMI OR = 1.03) non-white color (OR = 1.43) and higher frequency of other autoinflammatory diseases (OR = 1.37). Studylimitations:
Voluntary adherence survey with self-completion of the questionnaire by 390 from about 1600 group members.Conclusions:
Hidradenitis suppurativa patients who participated in a social network group had onset of the disease after puberty, with a predominance in females and overweight people, with great impact on the quality of life.
Texto completo:
Disponible
Colección:
Bases de datos internacionales
Contexto en salud:
Agenda de Salud Sostenible para las Américas
Problema de salud:
Objetivo 5: Medicamentos, vacunas y tecnologías sanitarias
Base de datos:
LILACS
Asunto principal:
Calidad de Vida
/
Hidradenitis Supurativa
/
Investigación Participativa Basada en la Comunidad
/
Medios de Comunicación Sociales
Tipo de estudio:
Estudio observacional
/
Estudio de prevalencia
/
Investigación cualitativa
/
Factores de riesgo
Aspecto:
Preferencia del paciente
Límite:
Adulto
/
Anciano
/
Femenino
/
Humanos
/
Masculino
Idioma:
Inglés
Revista:
An. bras. dermatol
Asunto de la revista:
Dermatologia
Año:
2019
Tipo del documento:
Artículo
País de afiliación:
Brasil
Institución/País de afiliación:
Universidade Estadual Paulista/BR