Calidad de vida, satisfacción y adherencia terapéutica en dermatitis atópica / Quality of life, satisfaction and therapeutic adherence in atopic dermatitis

ABSTRACT

Objectives: To evaluate the Health-Related Quality of Life (HRQoL) of the pediatric patient´s caregivers with Atopic Dermatitis (AD) measured by Parents Index of Quality of Life in Atopic Dermatitis questionnaire (PIQOL-AD) and EuroQoL-5D questionnaire (EQ-5D) and know the treatment satisfaction and therapeutic compliance using Morisky Green questionnaire. Methods: Observationa, multicentric and ambispective study with a 9 months of prospective phase. 372 patients <= 12 years old with AD from 78 centers of Spain. Patients were allocated in two defferent groups, patients from 0-23 months and patients from 24 months to 2 years old. Patients with AD and whose caregiver may attend all study visits. We collect severity variables (Investigator´s Global Assessment (IGA), EASI), HRQoL (EQ-5D, PIQoL.AD), questions about treatment satisfaction and Morisky Green questionnaire. Results: Mean age (ED) was 4,2 (3,2) years old. PIQoL-AD scores have correlation with patient severity (p<0,001). Patient´s caregivers major concerns were about "be careful with the clothes that the children may wear" (84,6%) and "skin´s childrens aspects" (80.8%). Relationship between severity (IGA) and EQ-5D questionnaire scores. After 9 months of follow up, scores of analogical visual scales (AVS) of EQ-5D increased statistically significant, 83% of the patient´s caregivers with less severity declare to be more or quite satisfied with the treatment. The scores of the adherence questionnaire showed that 25,3% of the patients had a high adherence to the treatment. Conclusions: Results shows that severity of AD is the most conditioning factor in the caregivers day life, in the treatment satisfaction and adherence compliance (AU)