Management of respite and personal assistance services in a consumer-directed family support programme.
J Intellect Disabil Res
; 47(Pt 4-5): 352-66, 2003.
Article
en En
| MEDLINE
| ID: mdl-12787166
ABSTRACT
BACKGROUND:
The present study explores the management of respite and personal assistance services by families with relatives with developmental disability (DD). It focuses on the control of families over recruiting, hiring, training, scheduling, directing and negotiating wages of the staff they hire to provide services.METHODS:
Surveys from 97 families using paid respite or personal assistance services were used to test associations between 1) level of control of services and outcome variables; 2) hiring relatives to provide services and outcome variables.RESULTS:
More control by families in the management of their respite/personal assistance services was associated with increased service satisfaction, increased community involvement of individuals with DD and increased employment of mothers. Families tended to hire friends, neighbours, and to a great extent, other family members. Hiring of other relatives to provide services was associated with the increased community involvement of individuals with DD.CONCLUSIONS:
The present study supports the idea that there are benefits for both caregivers and individuals with DD with increased control of respite and personal assistance services. The study also supports benefits associated with hiring relatives and recommends additional research in this area to guide policies.
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Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Cuidados Intermitentes
/
Apoyo Social
/
Familia
/
Participación de la Comunidad
/
Servicios Domésticos
Tipo de estudio:
Qualitative_research
Aspecto:
Determinantes_sociais_saude
Límite:
Adult
/
Female
/
Humans
/
Male
País/Región como asunto:
America do norte
Idioma:
En
Revista:
J Intellect Disabil Res
Asunto de la revista:
TRANSTORNOS MENTAIS
Año:
2003
Tipo del documento:
Article
País de afiliación:
Estados Unidos