Satisfaction in different life domains in children receiving home parenteral nutrition and their families.
J Pediatr
; 146(6): 793-7, 2005 Jun.
Article
en En
| MEDLINE
| ID: mdl-15973321
ABSTRACT
OBJECTIVE:
To assess the quality-of-life (QOL) of children receiving home parenteral nutrition (HPN). STUDYDESIGN:
A national multicenter study of 72 patients (median age 4 years) presenting with a digestive disease requiring HPN, and 90 siblings, 67 fathers, and 69 mothers of these children. Median duration of HPN was 2 years (3 months-18 years). QOL was measured using validated, nondisease-specific questionnaires appropriate to the children's ages.RESULTS:
The QOL scores were high in patients of all ages and were not significantly different from scores in a reference population of healthy children and adolescents. Lower QOL scores were recorded in the domains related to hospital, health, doctors, medications, and obligations. The QOL was not affected in siblings but was significantly impaired in parents, especially in mothers, who showed a lower level of satisfaction than did fathers for items related to work, inner life, and freedom. Presence of an ileostomy was the only factor that influenced QOL, especially of adolescents.CONCLUSIONS:
QOL of HPN-dependent children and siblings is not different from that of healthy children, suggesting that these children actively use effective coping strategies. In contrast, the QOL of parents of HPN-dependent children is low.
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Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Padres
/
Satisfacción Personal
/
Calidad de Vida
/
Nutrición Parenteral en el Domicilio
/
Hermanos
Tipo de estudio:
Clinical_trials
/
Etiology_studies
/
Incidence_studies
/
Observational_studies
/
Prevalence_studies
/
Qualitative_research
/
Risk_factors_studies
Aspecto:
Patient_preference
Límite:
Adolescent
/
Adult
/
Child
/
Child, preschool
/
Female
/
Humans
/
Infant
/
Male
/
Middle aged
/
Newborn
País/Región como asunto:
Europa
Idioma:
En
Revista:
J Pediatr
Año:
2005
Tipo del documento:
Article
País de afiliación:
Francia