'A place where I can be me': a role for social and leisure provision to support young people with language impairment.

BACKGROUND: The long-term well-being of children with language impairment is an area of increasing interest to families, educators and employers as language impairment is often life-long. Furthermore, language impairment and psychiatric difficulty are known to overlap in both populations originally diagnosed as having language impairment and those receiving mental health services. However, there are currently little data available about the wider quality of life for people with language impairment, especially from the perspective of the young people themselves. There is a dearth of information about community-based activities provided for the support and leisure of this population. The Afasic Youth Project meets once a week and is one of only a handful of such groups across the United Kingdom. METHODS & PROCEDURES: This study reports the experiences and views of 19 young people aged 13-23 years attending a leisure provision for young people with primary communication needs. The views of 20 parents were also gained. Interviews with young people and parents were based on items used in the Manchester Language Study in which a large group of young people with a history of language difficulties (n= 130) and typically developing 16-year-olds (n= 109) expressed their views on a range of quality of life measures. This allows a context against which to evaluate the responses of the young people in the study. An additional section of the interview was designed to address the young people's views on the Afasic Youth Project specifically. OUTCOMES & RESULTS: Social patterns of the young people were very similar to those reported by the Manchester Language Study indicating that they are a group relatively representative of the language impairment population. A number of positive themes emerged in relation to the club, which included freedom to be true to self, and meeting similar individuals. Interestingly, parents expressed some similar themes, but also had additional thoughts about the group, including the need to meet other parents in similar situations and the belief that the group was aiding social development. CONCLUSIONS & IMPLICATIONS: The analysis suggests that community-based social and leisure provision is an important 'missing' service for young people with language impairment, providing an alternative to school-based activities and support older teenagers beyond compulsory education. There is a pressing need to investigate the potential role of such facilities given that recent research into language impairment has clearly shown associations with long-term and wide-ranging social and emotional risk.