Sorrow, coping and resiliency: parents of children with cerebral palsy share their experiences.
Disabil Rehabil
; 35(17): 1447-52, 2013 Aug.
Article
en En
| MEDLINE
| ID: mdl-23167453
ABSTRACT
PURPOSE:
To explore the grieving, coping and resiliency experiences of parents of children with cerebral palsy (CP) and to investigate the suitability of chronic sorrow theory as a framework to understand those experiences.METHODS:
This study combined focus groups with a web-based cross-sectional survey to explore chronic sorrow in parents of children with CP. Eight parents of children with CP participated in focus groups. The discussion was transcribed verbatim and thematic analysis was performed. A further 94 parents participated in the web-based survey study in which they completed the Adapted Burke Questionnaire on chronic sorrow. A content analysis of responses was used to confirm the primary qualitative analysis.RESULTS:
The reports of parents in the focus group were consistent with chronic sorrow theory, as were the responses of parents to the web-based survey. Some parents found the diagnosis itself a distressing time whereas others found it a relief. Parents reported that times of medical and allied health intervention were particularly challenging.CONCLUSION:
Chronic sorry theory is a useful way of understanding the experiences of parents of children with CP. It is recommended that health practitioners are mindful that, even years after diagnosis, parents of children with CP may experience intensified chronic sorrow symptoms following a triggering event and that this is normal.
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Padres
/
Adaptación Psicológica
/
Pesar
/
Parálisis Cerebral
/
Niños con Discapacidad
/
Resiliencia Psicológica
Tipo de estudio:
Qualitative_research
Límite:
Adult
/
Child
/
Child, preschool
/
Female
/
Humans
/
Male
Idioma:
En
Revista:
Disabil Rehabil
Asunto de la revista:
REABILITACAO
Año:
2013
Tipo del documento:
Article
País de afiliación:
Australia