PARENT joint action: increasing the added value of patient registries in a cross-border setting.
Stud Health Technol Inform
; 192: 1161, 2013.
Article
en En
| MEDLINE
| ID: mdl-23920935
ABSTRACT
Patient registries are poorly interoperable and as a result data exchange or aggregation across organizations, regions and countries for secondary purposes (i.e. research and public health) is difficult to perform. PARENT Joint Action aims to provide EU Member States with a set of guidelines, recommendations and tools to support setting-up, management and governance of interoperable patient registries, thus helping EU Member States to drive down cost and interoperability risks of patient registries as well as improving secondary us-age of registry data in a cross-border setting.
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Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Sistema de Registros
/
Registro Médico Coordinado
/
Difusión de la Información
/
Unión Europea
/
Registros Electrónicos de Salud
/
Programas de Gobierno
/
Cooperación Internacional
Tipo de estudio:
Guideline
País/Región como asunto:
Europa
Idioma:
En
Revista:
Stud Health Technol Inform
Asunto de la revista:
INFORMATICA MEDICA
/
PESQUISA EM SERVICOS DE SAUDE
Año:
2013
Tipo del documento:
Article
País de afiliación:
Eslovenia