Controversies with Kalydeco: Newspaper coverage in Canada and the United States of the cystic fibrosis "wonder drug".
J Cyst Fibros
; 15(5): 624-9, 2016 09.
Article
en En
| MEDLINE
| ID: mdl-27150823
ABSTRACT
BACKGROUND:
The cystic fibrosis drug, Kalydeco, has attracted attention both for its effectiveness in particular CF patients and its substantial price tag. An analysis of newspaper portrayals of Kalydeco provides an opportunity to examine how policy issues associated with rare diseases and orphan drugs are being represented in the popular press.METHODS:
We conducted a content analysis of 203 newspaper articles in Canada and the U.S. that mention Kalydeco. Articles were analyzed for their main frame, discussion of Kalydeco, including issues of drug development, patient access, and reimbursement, and overall tone.RESULTS:
In Canadian newspaper coverage, 77.4% of articles were framed as human interest stories featuring individual patients seeking public funding for Kalydeco, yet only 7.5% mentioned any budgetary limitations in doing so. In contrast, U.S. newspaper coverage was framed as a financial/economic story in 43.1% of articles and a medical/scientific story in 27.8%.CONCLUSIONS:
Newspaper coverage varied significantly between Canada, where Kalydeco is predominantly a story about increasing patient access through full government funding, and the U.S., where Kalydeco is largely a financial story about the economic impact of Kalydeco. The difference in coverage may be due to differences in public funding between the healthcare systems of these two countries.Palabras clave
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Producción de Medicamentos sin Interés Comercial
/
Costos de los Medicamentos
/
Quinolonas
/
Fibrosis Quística
/
Aminofenoles
/
Accesibilidad a los Servicios de Salud
/
Periódicos como Asunto
Aspecto:
Determinantes_sociais_saude
Límite:
Humans
País/Región como asunto:
America do norte
Idioma:
En
Revista:
J Cyst Fibros
Año:
2016
Tipo del documento:
Article