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Development and Psychometric Evaluation of the MetabQoL 1.0: A Quality of Life Questionnaire for Paediatric Patients with Intoxication-Type Inborn Errors of Metabolism.
Zeltner, Nina A; Baumgartner, Matthias R; Bondarenko, Aljona; Ensenauer, Regina; Karall, Daniela; Kölker, Stefan; Mühlhausen, Chris; Scholl-Bürgi, Sabine; Thimm, Eva; Quitmann, Julia; Burgard, Peter; Landolt, Markus A; Huemer, Martina.
Afiliación
  • Zeltner NA; Division of Metabolism, Children's Research Center, University Children's Hospital, Zurich, Switzerland.
  • Baumgartner MR; Department of Psychosomatics and Psychiatry, Children's Research Center, University Children's Hospital, Zurich, Switzerland.
  • Bondarenko A; radiz - Rare Disease Initiative Zurich, Clinical Research Priority Program for Rare Diseases, University of Zurich, Zurich, Switzerland.
  • Ensenauer R; Division of Child and Adolescent Health Psychology, Department of Psychology, University of Zurich, Zurich, Switzerland.
  • Karall D; Division of Metabolism, Children's Research Center, University Children's Hospital, Zurich, Switzerland.
  • Kölker S; radiz - Rare Disease Initiative Zurich, Clinical Research Priority Program for Rare Diseases, University of Zurich, Zurich, Switzerland.
  • Mühlhausen C; Zurich Center for Integrative Human Physiology, University of Zurich, Zurich, Switzerland.
  • Scholl-Bürgi S; Center for Paediatric and Adolescent Medicine, Division for Neuropaediatrics and Metabolic Medicine, Heidelberg University Hospital, Heidelberg, Germany.
  • Thimm E; Division of Experimental Pediatrics and Metabolism, Department of General Pediatrics, Neonatology and Pediatric Cardiology, University Children's Hospital, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
  • Quitmann J; Clinic for Pediatrics, Inherited Metabolic Disorders, Medical University of Innsbruck, Innsbruck, Austria.
  • Burgard P; Center for Paediatric and Adolescent Medicine, Division for Neuropaediatrics and Metabolic Medicine, Heidelberg University Hospital, Heidelberg, Germany.
  • Landolt MA; University Children's Hospital, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
  • Huemer M; Clinic for Pediatrics, Inherited Metabolic Disorders, Medical University of Innsbruck, Innsbruck, Austria.
JIMD Rep ; 37: 27-35, 2017.
Article en En | MEDLINE | ID: mdl-28247338
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Qualitative_research Aspecto: Patient_preference Idioma: En Revista: JIMD Rep Año: 2017 Tipo del documento: Article País de afiliación: Suiza Pais de publicación: Estados Unidos
Texto completo
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Imprimir
XML
PubMed Links
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Qualitative_research Aspecto: Patient_preference Idioma: En Revista: JIMD Rep Año: 2017 Tipo del documento: Article País de afiliación: Suiza Pais de publicación: Estados Unidos