[Evaluation of adherence and satisfaction with intermittent catheterization in children: Feasibility and first steps of validation of InCaSaQ and ICAS in the pediatric population]. / Évaluation de l'adhérence et de la satisfaction aux sondages intermittents chez l'enfant : étude de faisabilité et premières étapes de validation d'InCaSaQ et ICAS dans la population pédiatrique.

INTRODUCTION: In pediatric neurourology, clean intermittent catheterization (CIC) setting, and then self catheterization learning are important steps for children with neurogenic bladder. There is no adherence and satisfaction evaluation scale for children who are using self or hetero CIC. The aim of this article is to study the feasibility of using InCaSaQ (Intermittent Catheterization Satisfaction Questionnaire) and ICAS (Intermittent Catheterization Adherence Scale) in children, and to validate the first steps. PATIENTS AND METHODS: Scale validation monocentric study. Inclusion criterias were patients with neurogenic bladder, under the age of 18, using CIC (auto or hetero). The questionnaires ICAS and InCaSaQ were sent twice between 2017 March and April, and then filled by the child or his parents depending on who was doing the CIC. The internal concistency (Cronbach's alpha) measured the construct validity. The reproductibility was measured by the intraclass correlation cœfficient (ICC) and the Wilcoxon and McNemar tests. Filling facility was evaluated for each score (evaluation with a 0 to 10 scale from the person who filled the questionnaire). RESULTS: Twenty two patients were included, and 50 questionnaires filled (25 ICAS and 25 InCaSaQ), twice each. Internal consistency was good for InCaSaQ (Cronbach's alpha>0,7) and so was ICAS and InCaSaQ reproductibility (ICC>0,7 for most of the questions). Patients under hetero-CIC had a worse adherence than parents of children under hetero-CIC (ICAS 3,25 versus 0,7 for children under hetero-CIC). The lowest InCaSaQ item was the way of throwing away their catheter. CONCLUSIONS: ICAS and InCaSaQ are interesting tools which can be used for children under auto and hetero-CIC. Studies with more patients will be necessary for finalizing the validation of these scales in the pediatric population. LEVEL OF PROOF: 4.