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Dutch juvenile idiopathic arthritis patients, carers and clinicians create a research agenda together following the James Lind Alliance method: a study protocol.
Schoemaker, Casper G; Armbrust, Wineke; Swart, Joost F; Vastert, Sebastiaan J; van Loosdregt, Jorg; Verwoerd, Anouk; Whiting, Caroline; Cowan, Katherine; Olsder, Wendy; Versluis, Els; van Vliet, Rens; Fernhout, Marlous J; Bookelman, Sanne L; Cappon, Jeannette; van den Berg, J Merlijn; Schatorjé, Ellen; Muller, Petra C E Hissink; Kamphuis, Sylvia; de Boer, Joke; Lelieveld, Otto T H M; van der Net, Janjaap; Jongsma, Karin R; van Rensen, Annemiek; Dedding, Christine; Wulffraat, Nico M.
Afiliación
  • Schoemaker CG; Pediatric Rheumatology and Immunology, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, Netherlands. C.G.Schoemaker-3@umcutrecht.nl.
  • Armbrust W; Netherlands JIA Patient and Parent Organisation, member of ENCA, Amsterdam, The Netherlands. C.G.Schoemaker-3@umcutrecht.nl.
  • Swart JF; National Institute for Public Health and the Environment (RIVM), Bilthoven, The Netherlands. C.G.Schoemaker-3@umcutrecht.nl.
  • Vastert SJ; Department of Paediatric Rheumatology, University Medical Centre Utrecht, Wilhelmina Children's Hospital, Room KC.03.063.0, P.O. box 85090, 3508 AB, Utrecht, The Netherlands. C.G.Schoemaker-3@umcutrecht.nl.
  • van Loosdregt J; University Medical Center Groningen (UMCG), Beatrix Childrens Hospital, Dept Pediatric Rheumatology and Immunology, University of Groningen, Groningen, The Netherlands.
  • Verwoerd A; Dutch Association for Pediatric Rheumatology, Amsterdam, The Netherlands.
  • Whiting C; Pediatric Rheumatology and Immunology, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, Netherlands.
  • Cowan K; Dutch Association for Pediatric Rheumatology, Amsterdam, The Netherlands.
  • Olsder W; Faculty of Medicine, Utrecht University, Utrecht, The Netherlands.
  • Versluis E; Pediatric Rheumatology and Immunology, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, Netherlands.
  • van Vliet R; Faculty of Medicine, Utrecht University, Utrecht, The Netherlands.
  • Fernhout MJ; Pediatric Rheumatology and Immunology, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, Netherlands.
  • Bookelman SL; Faculty of Medicine, Utrecht University, Utrecht, The Netherlands.
  • Cappon J; Pediatric Rheumatology and Immunology, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, Netherlands.
  • van den Berg JM; Faculty of Medicine, Utrecht University, Utrecht, The Netherlands.
  • Schatorjé E; James Lind Alliance, National Institute for Health Research Evaluation, Trials and Studies Coordinating Centre (NETSCC), based at the University of Southampton, Southampton, UK.
  • Muller PCEH; James Lind Alliance, National Institute for Health Research Evaluation, Trials and Studies Coordinating Centre (NETSCC), based at the University of Southampton, Southampton, UK.
  • Kamphuis S; Youth-R-Well.com, Young Patient Organisation, The Netherlands, member of EULAR PARE, Amsterdam, The Netherlands.
  • de Boer J; Netherlands JIA Patient and Parent Organisation, member of ENCA, Amsterdam, The Netherlands.
  • Lelieveld OTHM; Pediatric Rheumatology and Immunology, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, Netherlands.
  • van der Net J; Netherlands JIA Patient and Parent Organisation, member of ENCA, Amsterdam, The Netherlands.
  • Jongsma KR; Pediatric Rheumatology and Immunology, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, Netherlands.
  • van Rensen A; Netherlands JIA Patient and Parent Organisation, member of ENCA, Amsterdam, The Netherlands.
  • Dedding C; Netherlands JIA Patient and Parent Organisation, member of ENCA, Amsterdam, The Netherlands.
  • Wulffraat NM; Reade, Centre for Rehabilitation and Rheumatology, Department Rehabilitation, Amsterdam, The Netherlands.
Pediatr Rheumatol Online J ; 16(1): 57, 2018 Sep 15.
Article en En | MEDLINE | ID: mdl-30219072
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Participación del Paciente / Artritis Juvenil / Investigación Biomédica Tipo de estudio: Guideline / Prognostic_studies / Qualitative_research Aspecto: Patient_preference Límite: Adolescent / Child / Humans País/Región como asunto: Europa Idioma: En Revista: Pediatr Rheumatol Online J Año: 2018 Tipo del documento: Article País de afiliación: Países Bajos
Texto completo
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Imprimir
XML
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Participación del Paciente / Artritis Juvenil / Investigación Biomédica Tipo de estudio: Guideline / Prognostic_studies / Qualitative_research Aspecto: Patient_preference Límite: Adolescent / Child / Humans País/Región como asunto: Europa Idioma: En Revista: Pediatr Rheumatol Online J Año: 2018 Tipo del documento: Article País de afiliación: Países Bajos