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Understanding the burden of illness of excessive daytime sleepiness associated with obstructive sleep apnea: a qualitative study.
Waldman, Laura Tesler; Parthasarathy, Sairam; Villa, Kathleen F; Bron, Morgan; Bujanover, Shay; Brod, Meryl.
Afiliación
  • Waldman LT; The Brod Group, 219 Julia Ave, Mill Valley, CA, 94941, USA. laura@thebrodgroup.net.
  • Parthasarathy S; University of Arizona Health Sciences Center for Sleep and Circadian Sciences and Division of Pulmonary, Allergy, Critical Care & Sleep Medicine, University of Arizona, Tucson, AZ, USA.
  • Villa KF; Jazz Pharmaceuticals, Palo Alto, CA, USA.
  • Bron M; Jazz Pharmaceuticals, Palo Alto, CA, USA.
  • Bujanover S; Jazz Pharmaceuticals, Palo Alto, CA, USA.
  • Brod M; The Brod Group, 219 Julia Ave, Mill Valley, CA, 94941, USA.
Health Qual Life Outcomes ; 18(1): 128, 2020 May 07.
Article en En | MEDLINE | ID: mdl-32381095
BACKGROUND: Obstructive sleep apnea (OSA) is associated with excessive daytime sleepiness (EDS), which may go undiagnosed and can significantly impair a patient's health-related quality of life (HRQOL). This qualitative research examined timing and reasons patients sought medical care for their EDS and OSA symptoms, and the impact of EDS on HRQOL. METHODS: Focus groups were conducted in 3 US cities with 42 participants currently experiencing EDS with OSA. Transcripts were coded and analyzed using an adapted grounded theory approach common to qualitative research. RESULTS: Over three-fifths of study participants (n = 26, 62%) were currently using a positive airway pressure (PAP) or dental device; one-third (n = 14, 33%) had previously used a positive airway pressure (PAP) or dental device, and the remainder had either used another treatment (n = 1, 2%) or were treatment naïve (n = 1, 2%). Twenty-two participants (52%) reported experiencing OSA symptoms for ≥1 year, with an average duration of 11.4 (median 8.0, range 1-37) years before seeking medical attention. Several (n = 7, 32%) considered their symptoms to be "normal," rather than signaling a serious medical condition. Thirty participants (71%) discussed their reasons for ultimately seeking medical attention, which included: input from spouse/partner, another family member, or friend (n = 20, 67%); their own concern about particular symptoms (n = 7, 23%); and/or falling asleep while driving (n = 5, 17%). For all 42 participants, HRQOL domains impacted by EDS included: physical health and functioning (n = 40, 95%); work productivity (n = 38, 90%); daily life functioning (n = 39, 93%); cognition (n = 38, 90%); social life/relationships (n = 37, 88%); and emotions (n = 30, 71%). CONCLUSIONS: Findings suggest that patients may be unaware that their symptoms could indicate OSA requiring evaluation and treatment. Even following diagnosis, EDS associated with OSA can continue to substantially affect HRQOL and daily functioning. Further research is needed to address diagnostic delays and unmet treatment needs for patients with EDS associated with OSA.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Apnea Obstructiva del Sueño / Somnolencia Tipo de estudio: Qualitative_research / Risk_factors_studies Aspecto: Patient_preference Límite: Adult / Female / Humans / Male / Middle aged Idioma: En Revista: Health Qual Life Outcomes Asunto de la revista: SAUDE PUBLICA Año: 2020 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Apnea Obstructiva del Sueño / Somnolencia Tipo de estudio: Qualitative_research / Risk_factors_studies Aspecto: Patient_preference Límite: Adult / Female / Humans / Male / Middle aged Idioma: En Revista: Health Qual Life Outcomes Asunto de la revista: SAUDE PUBLICA Año: 2020 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido