The development and validation of the CARe Burn Scale: Child Form: a parent-proxy-reported outcome measure assessing quality of life for children aged 8 years and under living with a burn injury.
Qual Life Res
; 30(1): 239-250, 2021 Jan.
Article
en En
| MEDLINE
| ID: mdl-32902793
ABSTRACT
PURPOSE:
Patient-reported outcome measures (PROMs) identify patient needs and therapeutic progress. This paper outlines the development and validation of the CARe Burn Scale Child Form, a parent-proxy-reported outcome measure that assesses quality of life in children aged 8 and under living with a burn injury.METHODS:
A literature review and interviews with 12 parents of children with a burn and seven health professionals informed the development of a conceptual framework and draft PROM. Cognitive debriefing interviews with 18 parents and eight health professionals provided feedback to ascertain content validity, and 311 parents took part in field testing. Rasch and traditional psychometric analyses were conducted to create a shortened version. Further psychometric analyses with 133 parents tested the shortened CARe Burn Scale in relation to other parent-proxy measures.RESULTS:
The final conceptual framework included 5 domains Social and Emotional Difficulties, Social and Emotional Well-Being, Wound/Scar Discomfort, Wound/Scar Treatment and Physical Abilities. Two scales fulfilled Rasch and traditional psychometric analyses, providing evidence of construct validity, acceptability, and reliability. Three scales did not fulfil the Rasch criteria and were retained as checklists. Compared to other parent-proxy measures, individual CARe Burn Scales correlated moderately with similar constructs and had low correlations with dissimilar constructs, indicating evidence of criterion validity (concurrent and discriminant).CONCLUSIONS:
The CARe Burn Scale Child Form can be used to measure children's quality of life after having a burn injury which can inform rehabilitation and surgical decision-making.Palabras clave
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Padres
/
Psicometría
/
Calidad de Vida
/
Quemaduras
/
Medición de Resultados Informados por el Paciente
Tipo de estudio:
Prognostic_studies
/
Qualitative_research
Aspecto:
Patient_preference
Límite:
Child, preschool
/
Female
/
Humans
/
Male
Idioma:
En
Revista:
Qual Life Res
Asunto de la revista:
REABILITACAO
/
TERAPEUTICA
Año:
2021
Tipo del documento:
Article
País de afiliación:
Reino Unido