Informatics-enabled citizen science to advance health equity.
J Am Med Inform Assoc
; 28(9): 2009-2012, 2021 08 13.
Article
en En
| MEDLINE
| ID: mdl-34151980
ABSTRACT
The COVID-19 pandemic has once again highlighted the ubiquity and persistence of health inequities along with our inability to respond to them in a timely and effective manner. There is an opportunity to address the limitations of our current approaches through new models of informatics-enabled research and clinical practice that shift the norm from small- to large-scale patient engagement. We propose augmenting our approach to address health inequities through informatics-enabled citizen science, challenging the types of questions being asked, prioritized, and acted upon. We envision this democratization of informatics that builds upon the inclusive tradition of community-based participatory research (CBPR) as a logical and transformative step toward improving individual, community, and population health in a way that deeply reflects the needs of historically marginalized populations.
Palabras clave
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Equidad en Salud
/
Informática
/
Investigación Participativa Basada en la Comunidad
/
Ciencia Ciudadana
Tipo de estudio:
Prognostic_studies
Aspecto:
Equity_inequality
Límite:
Humans
Idioma:
En
Revista:
J Am Med Inform Assoc
Asunto de la revista:
INFORMATICA MEDICA
Año:
2021
Tipo del documento:
Article
País de afiliación:
Estados Unidos