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"Sometimes I Feel Grateful…": Experiences of the Adolescent Siblings of Children with Autism Spectrum Disorder in Malaysia.
Chu, Shin Ying; Kassim, Siti Nur Zafirah Binti; Gan, Chun Hong; Fierro, Veronica; Chan, Caryn Mei Hsien; Hersh, Deborah.
Afiliación
  • Chu SY; Faculty of Health Sciences, Centre for Healthy Ageing and Wellness (H-CARE), Speech Sciences Programme, Universiti Kebangsaan Malaysia, Jalan Raja Muda Abdul Aziz, 50300, Kuala Lumpur, Malaysia. chushinying@ukm.edu.my.
  • Kassim SNZB; Faculty of Health Sciences, Centre for Healthy Ageing and Wellness (H-CARE), Speech Sciences Programme, Universiti Kebangsaan Malaysia, Jalan Raja Muda Abdul Aziz, 50300, Kuala Lumpur, Malaysia.
  • Gan CH; Faculty of Health Sciences, Centre for Rehabilitation and Special Needs, Clinical Psychology and Behavioral Health Programme , Universiti Kebangsaan Malaysia, Jalan Raja Muda Abdul Aziz, 50300, Kuala Lumpur, Malaysia.
  • Fierro V; Department of Communication Sciences and Disorders, Rockhurst University, 1100 Rockhurst Road, Kansas City, MO, 64110, USA.
  • Chan CMH; Faculty of Health Sciences, Centre for Community Health Sciences (ReaCH), Health Education Programme , Universiti Kebangsaan Malaysia , Jalan Raja Muda Abdul Aziz, 50300, Kuala Lumpur, Malaysia.
  • Hersh D; School of Medical and Health Sciences, Edith Cowan University, 270 Joondalup Drive, Joondalup, WA, 6027, Australia.
J Autism Dev Disord ; 53(2): 795-807, 2023 Feb.
Article en En | MEDLINE | ID: mdl-34247302
Sibling relationships remain understudied in typically developing adolescents who have siblings with autism spectrum disorder (ASD). This study explored the lived experiences and perceptions of adolescents who have a brother or a sister with a diagnosis of ASD using semi-structured interviews. Using thematic analysis, the participants reported having difficulties communicating with their siblings. Feeling a mixture of emotions was common when interacting with their siblings with ASD and emotional self-regulation was a typical coping strategy utilized by these adolescents. Despite the challenges, having a sibling with ASD led to closer relationships between the siblings. These findings offer insights into these adolescents' needs and how they may be best supported, informing the practice of speech-language pathology and other health professions.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Hermanos / Trastorno del Espectro Autista Tipo de estudio: Qualitative_research Límite: Adolescent / Child / Humans / Male País/Región como asunto: Asia Idioma: En Revista: J Autism Dev Disord Año: 2023 Tipo del documento: Article País de afiliación: Malasia Pais de publicación: Estados Unidos

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Hermanos / Trastorno del Espectro Autista Tipo de estudio: Qualitative_research Límite: Adolescent / Child / Humans / Male País/Región como asunto: Asia Idioma: En Revista: J Autism Dev Disord Año: 2023 Tipo del documento: Article País de afiliación: Malasia Pais de publicación: Estados Unidos