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Twelve months into a feasibility trial: reflections on three experiences of public and patient involvement in research.
Joyce, Robert; Dwyer, Christopher P; Hynes, Sinéad M.
Afiliación
  • Joyce R; School of Health Sciences, National University of Ireland, Galway, Galway, Ireland.
  • Dwyer CP; School of Health Sciences, National University of Ireland, Galway, Galway, Ireland.
  • Hynes SM; School of Health Sciences, National University of Ireland, Galway, Galway, Ireland.
HRB Open Res ; 4: 11, 2021.
Article en En | MEDLINE | ID: mdl-34381956
In this Open Letter we present reflections from three different perspectives on the integration of public and patient involvement (PPI) in a research trial. We reflect on the experience of having a patient employed as a contract researcher, with no prior research experience, on a feasibility trial of cognitive rehabilitation in multiple sclerosis. This Open Letter is written by the PPI research team member with reflections from a researcher on the trial and the principle investigator. We will discuss some of the changes made and the impacts that have been resulted from of PPI input into the trial. We focus on PPI involvement in participant recruitment, the development of trial material, integration of PPI along the research cycle, and collaboration. We hope that this Open Letter will encourage principle investigators and groups to include PPI members as part of the research team and help patients and members of the public understand what the experience of PPI members is like.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: HRB Open Res Año: 2021 Tipo del documento: Article País de afiliación: Irlanda Pais de publicación: Irlanda

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: HRB Open Res Año: 2021 Tipo del documento: Article País de afiliación: Irlanda Pais de publicación: Irlanda