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A comprehensive framework for navigating patient care in systemic sclerosis: A global response to the need for improving the practice of diagnostic and preventive strategies in SSc.
Saketkoo, Lesley Ann; Frech, Tracy; Varjú, Cecília; Domsic, Robyn; Farrell, Jessica; Gordon, Jessica K; Mihai, Carina; Sandorfi, Nora; Shapiro, Lee; Poole, Janet; Volkmann, Elizabeth R; Lammi, Monika; McAnally, Kendra; Alexanderson, Helene; Pettersson, Henrik; Hant, Faye; Kuwana, Masataka; Shah, Ami A; Smith, Vanessa; Hsu, Vivien; Kowal-Bielecka, Otylia; Assassi, Shervin; Cutolo, Maurizio; Kayser, Cristiane; Shanmugam, Victoria K; Vonk, Madelon C; Fligelstone, Kim; Baldwin, Nancy; Connolly, Kerri; Ronnow, Anneliese; Toth, Beata; Suave, Maureen; Farrington, Sue; Bernstein, Elana J; Crofford, Leslie J; Czirják, László; Jensen, Kelly; Hinchclif, Monique; Hudson, Marie; Lammi, Matthew R; Mansour, Jennifer; Morgan, Nadia D; Mendoza, Fabian; Nikpour, Mandana; Pauling, John; Riemekasten, Gabriela; Russell, Anne-Marie; Scholand, Mary Beth; Seigart, Elise; Rodriguez-Reyna, Tatiana Sofia.
Afiliación
  • Saketkoo LA; New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, USA; Tulane University School of Medicine, New Orleans, USA; Louisiana State University School of Medicine, Section of Pulmonary Medicine, New Orleans, USA; University Medical Center - Comprehensive Pulmonary Hype
  • Frech T; Vanderbilt University Medical Center, Nashville, TN, USA.
  • Varjú C; Department of Rheumatology and Immunology, Medical School, University of Pécs, Pécs, Hungary.
  • Domsic R; University of Pittsburgh, Pittsburgh, PA, USA.
  • Farrell J; Albany College of Pharmacy and Health Sciences, Albany, NY, USA; Steffens Scleroderma Foundation, Albany, NY, USA.
  • Gordon JK; Department of Rheumatology at Hospital for Special Surgery, New York, NY, USA.
  • Mihai C; Department of Rheumatology, University Hospital Zurich, University of Zurich, Zurich, Switzerland; Department of Internal Medicine and Rheumatology, Carol Davila University of Medicine and Pharmacy, Bucharest, Romania.
  • Sandorfi N; Perelman School of Medicine, Philadelphia, PA, USA.
  • Shapiro L; Steffens Scleroderma Foundation, Albany, NY, USA; Division of Rheumatology, Albany Medical Center, Albany, NY, USA.
  • Poole J; Occupational Therapy Graduate Program, University of New Mexico, Albuquerque, NM, USA.
  • Volkmann ER; University of California, David Geffen School of Medicine, UCLA Scleroderma Program and UCLA CTD-ILD Program, Division of Rheumatology, Department of Medicine, Los Angeles, CA, USA.
  • Lammi M; Ochsner Medical Center, New Orleans, LA, USA.
  • McAnally K; Norton Thoracic Institute, St. Joseph's Hospital and Medical Centre, Phoenix, AZ, USA.
  • Alexanderson H; Function Allied Health Professionals, Medical Unit Occupational Therapy and Physiotherapy, Karolinska University Hospital, Stockholm, Sweden; Department of Medicin, Solna, Karolinska Institutet, Stockholm, Sweden.
  • Pettersson H; Function Allied Health Professionals, Medical Unit Occupational Therapy and Physiotherapy, Karolinska University Hospital, Stockholm, Sweden; Department of Medicin, Solna, Karolinska Institutet, Stockholm, Sweden.
  • Hant F; Division of Rheumatology, Medical University of South Caroline, SC, USA.
  • Kuwana M; Department of Allergy and Rheumatology, Nippon Medical School Graduate School of Medicine, Tokyo, Japan.
  • Shah AA; Department of Medicine, Johns Hopkins University, Baltimore, MD, USA.
  • Smith V; Department of Internal Medicine, Ghent University, and Department of Rheumatology, Ghent University Hospital, Ghent, Belgium.
  • Hsu V; Rutgers- RWJ Scleroderma Program, New Brunswick, NJ, USA.
  • Kowal-Bielecka O; Department of Rheumatology and Internal Medicine, Medical University of Bialystok, Bialystok, Poland.
  • Assassi S; Rheumatology, University of Texas Health Science Center at Houston, Houston, TX, USA.
  • Cutolo M; Research Laboratory and Academic Division of Clinical Rheumatology, Department of Internal Medicine, University of Genova, IRCCS Polyclinic San Martino Hospital, Genova, Italy.
  • Kayser C; Escola Paulista de Medicina, Federal University of São Paulo (UNIFESP) São Paulo, SP, Brazil.
  • Shanmugam VK; Department of Rheumatology, George Washington University, School of Medicine and Health Sciences, Washington, DC, USA.
  • Vonk MC; Department of the rheumatic diseases, Radboud University Medical Center, Nijmegen, the Netherlands.
  • Fligelstone K; Patient Research Partner, Scleroderma & Raynaud Society UK (SRUK), London, UK; Royal Free Hospital, London, UK.
  • Baldwin N; Patient Research Partner, Scleroderma Foundation, Chicago, IL, USA.
  • Connolly K; Scleroderma Foundation, Danvers, MA, USA.
  • Ronnow A; Federation of European Scleroderma Associations, Copenhagen, Denmark; Federation of European Scleroderma Associations, Budapest, Hungary; Federation of European Scleroderma Associations, London, UK.
  • Toth B; Federation of European Scleroderma Associations, Copenhagen, Denmark; Federation of European Scleroderma Associations, Budapest, Hungary; Federation of European Scleroderma Associations, London, UK.
  • Suave M; Scleroderma Canada, Canada.
  • Farrington S; Patient Research Partner, Scleroderma & Raynaud Society UK (SRUK), London, UK; Federation of European Scleroderma Associations, Copenhagen, Denmark; Federation of European Scleroderma Associations, Budapest, Hungary; Federation of European Scleroderma Associations, London, UK.
  • Bernstein EJ; Columbia University/New York-Presbyterian Scleroderma Program, Division of Rheumatology, Department of Medicine, Columbia University College of Physicians and Surgeons, New York, NY, USA.
  • Crofford LJ; Vanderbilt University Medical Center, Nashville, TN, USA.
  • Czirják L; Department of Rheumatology and Immunology, Medical School, University of Pécs, Pécs, Hungary.
  • Jensen K; Tulane University School of Medicine, New Orleans, USA; Oregon Health and Science University, Portland, OR, USA.
  • Hinchclif M; Yale School of Medicine, Department of Internal Medicine, Section of Rheumatology, Allergy & Immunology, USA.
  • Hudson M; Division of heumatology and Department of Medicine, Jewish General Hospital and McGill University, Montreal, QC, Canada.
  • Lammi MR; New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, USA; Louisiana State University School of Medicine, Section of Pulmonary Medicine, New Orleans, USA; University Medical Center - Comprehensive Pulmonary Hypertension Center and Interstitial Lung Disease Clinic Pro
  • Mansour J; Tulane University School of Medicine, New Orleans, USA.
  • Morgan ND; Department of Medicine, Johns Hopkins University, Baltimore, MD, USA.
  • Mendoza F; Rheumatology Division, Department of Medicine, Thomas Jefferson University, Philadelphia, PA, USA.
  • Nikpour M; Jefferson Institute of Molecular Medicine and Scleroderma Center, Thomas Jefferson University, Philadelphia, PA, USA.
  • Pauling J; University of Melbourne, Melbourne at St. Vincent's Hospital Melbourne, Victoria, Australia.
  • Riemekasten G; Royal National Hospital for Rheumatic Diseases, Bath, UK; University of Lübeck, University Clinic of Schleswig-Holstein, Dept Rheumatology and Clinical Immunology, Lübeck, Germany.
  • Russell AM; University of Exeter, College of Medicine and Health, Exeter, UK.
  • Scholand MB; University of Utah, Division of Pulmonary Medicine, Pulmonary Fibrosis Center, Salt Lake City, UT, USA.
  • Seigart E; Department of Rheumatology and Clinical Immunology Charité - Universitätsmedizin Berlin and Berlin Institute of Health, Berlin, Germany.
  • Rodriguez-Reyna TS; Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Mexico City, Mexico.
Best Pract Res Clin Rheumatol ; 35(3): 101707, 2021 09.
Article en En | MEDLINE | ID: mdl-34538573

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Esclerodermia Sistémica / Enfermedades Pulmonares Intersticiales / Hipertensión Pulmonar Tipo de estudio: Diagnostic_studies / Etiology_studies Aspecto: Patient_preference Límite: Humans Idioma: En Revista: Best Pract Res Clin Rheumatol Asunto de la revista: REUMATOLOGIA Año: 2021 Tipo del documento: Article Pais de publicación: Países Bajos

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Esclerodermia Sistémica / Enfermedades Pulmonares Intersticiales / Hipertensión Pulmonar Tipo de estudio: Diagnostic_studies / Etiology_studies Aspecto: Patient_preference Límite: Humans Idioma: En Revista: Best Pract Res Clin Rheumatol Asunto de la revista: REUMATOLOGIA Año: 2021 Tipo del documento: Article Pais de publicación: Países Bajos