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Factors impacting adolescent and young adult cancer patients' decision to pursue genetic counseling and testing.
Morand, Megan; Roth, Michael; Peterson, Susan K; Bednar, Erica M; Ramdaney, Aarti; Livingston, J Andrew; Yarbrough, Angela; Corredor, Jessica.
Afiliación
  • Morand M; The University of Texas MD Anderson Cancer Center UTHealth Graduate School of Biomedical Sciences, Houston, TX, USA.
  • Roth M; Department of Pediatrics, The University of Texas Medical Branch, Galveston, TX, USA.
  • Peterson SK; Division of Pediatrics, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
  • Bednar EM; Department of Behavioral Science, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
  • Ramdaney A; Clinical Cancer Genetics, The University of Texas MD Anderson Cancer Center, 1515 Holcombe Blvd., Houston, TX, 77030, USA.
  • Livingston JA; Cancer Prevention and Moon Shots Program, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
  • Yarbrough A; Department of Obstetrics, Gynecology and Reproductive Sciences, McGovern Medical School at the University of Texas Health Science Center at Houston, Houston, TX, USA.
  • Corredor J; Department of Pediatrics, The University of Texas Medical Branch, Galveston, TX, USA.
Support Care Cancer ; 30(6): 5481-5489, 2022 Jun.
Article en En | MEDLINE | ID: mdl-35306607
PURPOSE: Adolescent and young adult (AYA) cancer patients face challenges when navigating cancer treatment and survivorship. Many are at risk for cancer predisposition syndromes; however, factors influencing pursuit of genetic counseling and testing have not been reported. We describe AYA cancer patients' decision-making process, including motivational factors and barriers, as it relates to utilization of genetic services. METHODS: Thirty AYAs diagnosed with cancer previously referred for cancer predisposition genetic counseling completed semi-structured interviews via audio-only Zoom calls. Thematic analysis was used to perform qualitative analysis and identify major themes. RESULTS: The sample comprised 21 AYAs who had genetic counseling and nine who did not. Motivational factors identified included learning genetic counseling is an available service, concern about the impact of a hereditary syndrome on family members and family planning, learning about the need for cancer screening or prevention, affordability of genetic testing, and easing worry about additional cancer risks. For those who did not pursue genetic counseling, barriers included scheduling or other priorities, worry, and cost. However, the majority expressed they would reconsider genetic counseling in the future. CONCLUSION: AYA cancer patients have similar motivational factors to pursue genetic counseling compared to other patients; however, their younger age of diagnosis may alter how these factors affect decision-making. While there are barriers limiting access to genetic services, they did not decrease interest in future genetic counseling for most patients. Genetic counseling and testing should be discussed with patients who previously declined genetic services.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Asesoramiento Genético / Neoplasias Tipo de estudio: Prognostic_studies / Qualitative_research Límite: Adolescent / Adult / Humans Idioma: En Revista: Support Care Cancer Asunto de la revista: NEOPLASIAS / SERVICOS DE SAUDE Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Alemania

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Asesoramiento Genético / Neoplasias Tipo de estudio: Prognostic_studies / Qualitative_research Límite: Adolescent / Adult / Humans Idioma: En Revista: Support Care Cancer Asunto de la revista: NEOPLASIAS / SERVICOS DE SAUDE Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Alemania