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Donor perspectives on informed consent and use of biospecimens for brain organoid research.
MacDuffie, Katherine E; Stein, Jason L; Doherty, Dan; Jayadev, Suman; Girault, Jessica B; Emmons, Katherine A; Glass, Madison Rose; Dempsey, Jennifer C; Marrus, Natasha; Botteron, Kelly N; Dager, Stephen R; Estes, Annette M; Piven, Joseph; Wilfond, Benjamin S.
Afiliación
  • MacDuffie KE; Department of Pediatrics, University of Washington School of Medicine, Seattle, WA, USA; Treuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute, Seattle, WA, USA. Electronic address: kate.macduffie@seattlechildrens.org.
  • Stein JL; Department of Genetics, University of North Carolina School of Medicine, Chapel Hill, NC, USA.
  • Doherty D; Department of Pediatrics, University of Washington School of Medicine, Seattle, WA, USA.
  • Jayadev S; Department of Neurology, University of Washington School of Medicine, Seattle, WA, USA.
  • Girault JB; Department of Psychiatry, University of North Carolina School of Medicine, Chapel Hill, NC, USA.
  • Emmons KA; Department of Speech & Hearing Sciences, University of Washington, Seattle, WA, USA.
  • Glass MR; Department of Genetics, University of North Carolina School of Medicine, Chapel Hill, NC, USA.
  • Dempsey JC; Department of Pediatrics, University of Washington School of Medicine, Seattle, WA, USA.
  • Marrus N; Department of Psychiatry, Washington University School of Medicine in St. Louis, St. Louis, MO, USA.
  • Botteron KN; Department of Psychiatry, Washington University School of Medicine in St. Louis, St. Louis, MO, USA.
  • Dager SR; Department of Radiology, University of Washington School of Medicine, Seattle, WA, USA.
  • Estes AM; Department of Speech & Hearing Sciences, University of Washington, Seattle, WA, USA.
  • Piven J; Department of Psychiatry, University of North Carolina School of Medicine, Chapel Hill, NC, USA.
  • Wilfond BS; Department of Pediatrics, University of Washington School of Medicine, Seattle, WA, USA; Treuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute, Seattle, WA, USA.
Stem Cell Reports ; 18(7): 1389-1393, 2023 07 11.
Article en En | MEDLINE | ID: mdl-37352851
Debates about the ethics of human brain organoids have proceeded without the input of individuals whose brains are being modeled. Interviews with donors of biospecimens for brain organoid research revealed overall enthusiasm for brain organoids as a tool for biomedical discovery, alongside a desire for ongoing engagement with research teams to learn the results of the research, to allow transfer of decision-making authority over time, and to ensure ethical boundaries are not crossed. Future work is needed to determine the most feasible and resource-efficient way to longitudinally engage donors participating in brain organoid research.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Bancos de Muestras Biológicas / Investigación Biomédica Tipo de estudio: Prognostic_studies Aspecto: Ethics Límite: Humans Idioma: En Revista: Stem Cell Reports Año: 2023 Tipo del documento: Article Pais de publicación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Bancos de Muestras Biológicas / Investigación Biomédica Tipo de estudio: Prognostic_studies Aspecto: Ethics Límite: Humans Idioma: En Revista: Stem Cell Reports Año: 2023 Tipo del documento: Article Pais de publicación: Estados Unidos