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Data accuracy, consistency and completeness of the national Swiss cystic fibrosis patient registry: Lessons from an ECFSPR data quality project.
Wolf, Lara; Usemann, Jakob; Collaud, Eugénie; Derkenne, Marie-France; Fischer, Reta; Hensen, Maxime; Hitzler, Michael; Hofer, Markus; Inci, Demet; Irani, Sarosh; Jahn, Kathleen; Koutsokera, Angela; Kusche, Rachel; Kurowski, Thomas; Latzin, Philipp; Lin, Dagmar; Mioranza, Laurence; Moeller, Alexander; Mornand, Anne; Mueller-Suter, Dominik; Murer, Christian; Naehrlich, Lutz; Plojoux, Jérôme; Regamey, Nicolas; Rodriguez, Romy; Rochat, Isabelle; Sauty, Alain; Schuurmans, Macé; Semmler, Michaela; Trachsel, Daniel; Walter, Anna-Lena; Jung, Andreas.
Afiliación
  • Wolf L; Department of Respiratory Medicine, University Children's Hospital Zurich, Switzerland; Departments of Pulmonology and Paediatric Pulmonology, Cantonal Hospital Winterthur, Switzerland.
  • Usemann J; Department of Respiratory Medicine, University Children's Hospital Zurich, Switzerland; Department of Pulmonology, University Children's Hospital Basel, Switzerland.
  • Collaud E; Department of Respiratory Medicine, University Children's Hospital Zurich, Switzerland.
  • Derkenne MF; Department of Pulmonology, Lausanne University Hospital, Switzerland.
  • Fischer R; Quartier Bleu, Pulmonology Outpatient Clinic, Berne, Switzerland.
  • Hensen M; Department of Paediatrics, Cantonal Hospital Fribourg, Switzerland.
  • Hitzler M; Department of Paediatric Pulmonology, Cantonal Hospital Lucerne, Switzerland.
  • Hofer M; Departments of Pulmonology and Paediatric Pulmonology, Cantonal Hospital Winterthur, Switzerland.
  • Inci D; Department of Respiratory Medicine, University Children's Hospital Zurich, Switzerland.
  • Irani S; Department of Pulmonology, Cantonal Hospital Aarau, Switzerland.
  • Jahn K; Clinic of Respiratory Medicine and Pulmonary Cell Research, University Hospital Basel, Switzerland.
  • Koutsokera A; Department of Pulmonology, Lausanne University Hospital, Switzerland.
  • Kusche R; Department of Pulmonology, Cantonal Hospital Aarau, Switzerland; Department of Paediatric Pulmonology, Cantonal Hospital Aarau, Switzerland.
  • Kurowski T; Department of Pulmonology, University Hospital Zurich, Switzerland.
  • Latzin P; Division of Paediatric Respiratory Medicine and Allergology, Department of Paediatrics, Inselspital Berne University Hospital, Switzerland.
  • Lin D; Department of Pulmonology, Inselspital Berne University Hospital, Switzerland.
  • Mioranza L; Paediatric Pulmonology and Cystic Fibrosis Unit, Division of Paediatrics, Department Woman-Mother-Child, Lausanne University Hospital, Switzerland.
  • Moeller A; Department of Respiratory Medicine, University Children's Hospital Zurich, Switzerland.
  • Mornand A; Department of Paediatric Pulmonology, Geneva University Hospital, Switzerland.
  • Mueller-Suter D; Department of Paediatric Pulmonology, Cantonal Hospital Aarau, Switzerland.
  • Murer C; Department of Pulmonology, Cantonal Hospital Lucerne, Switzerland.
  • Naehrlich L; Department of Paediatrics, Justus-Liebig-University Giessen, Germany; European Cystic Fibrosis Society Patient Registry, Karup, Denmark.
  • Plojoux J; Deparment of Pulmonology, Geneva University Hospital, Switzerland.
  • Regamey N; Department of Paediatric Pulmonology, Cantonal Hospital Lucerne, Switzerland.
  • Rodriguez R; Division of Paediatric Respiratory Medicine and Allergology, Department of Paediatrics, Inselspital Berne University Hospital, Switzerland.
  • Rochat I; Paediatric Pulmonology and Cystic Fibrosis Unit, Division of Paediatrics, Department Woman-Mother-Child, Lausanne University Hospital, Switzerland.
  • Sauty A; Department of Pulmonology, Réseau Hospitalier Neuchâtelois, Switzerland.
  • Schuurmans M; Department of Pulmonology, University Hospital Zurich, Switzerland.
  • Semmler M; Department of Pulmonology, Inselspital Berne University Hospital, Switzerland.
  • Trachsel D; Department of Pulmonology, University Children's Hospital Basel, Switzerland.
  • Walter AL; Department of Pulmonology, Cantonal Hospital St. Gallen, Switzerland.
  • Jung A; Department of Respiratory Medicine, University Children's Hospital Zurich, Switzerland; Departments of Pulmonology and Paediatric Pulmonology, Cantonal Hospital Winterthur, Switzerland; European Cystic Fibrosis Society Patient Registry, Karup, Denmark. Electronic address: andreas.jung@kispi.uzh.ch.
J Cyst Fibros ; 2023 Nov 22.
Article en En | MEDLINE | ID: mdl-37996316
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: J Cyst Fibros Año: 2023 Tipo del documento: Article País de afiliación: Suiza
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: J Cyst Fibros Año: 2023 Tipo del documento: Article País de afiliación: Suiza