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Meaning-Making Among Parents of Children With Severe Neurologic Impairment in the PICU.
Bogetz, Jori F; Oslin, Ellie; O'Donnell, Maeve; Barton, Krysta S; Yi-Frazier, Joyce P; Watson, R Scott; Rosenberg, Abby R.
Afiliación
  • Bogetz JF; Divisions of Bioethics and Palliative Care.
  • Oslin E; Treuman Katz Center for Bioethics.
  • O'Donnell M; Divisions of Bioethics and Palliative Care.
  • Barton KS; Center for Clinical and Translational Research.
  • Yi-Frazier JP; Biostatistics Epidemiology and Analytics for Research (BEAR) Core, Seattle Children's Research Institute; Seattle, Washington.
  • Watson RS; Center for Clinical and Translational Research.
  • Rosenberg AR; Division of Critical Care, Department of Pediatrics, University of Washington School of Medicine; Seattle, Washington.
Pediatrics ; 153(4)2024 Apr 01.
Article en En | MEDLINE | ID: mdl-38529567
ABSTRACT
BACKGROUND AND

OBJECTIVES:

Parents and family caregivers of children with severe neurologic impairment (SNI) experience many stressors, especially during their child's critical illness. This study aimed to examine parent experiences around the time of their child's PICU care to explore ways parents make meaning in relation to these stressors.

METHODS:

This qualitative study of data from a single center in the United States followed Consolidated Criteria for Reporting Qualitative Research guidelines. One to one semistructured interviews queried parents' psychosocial well-being around the time of their child's PICU care. Eligible participants had a child with an SNI condition for >3 months admitted to the PICU for >24 hours with an expected length of stay >1 week.

RESULTS:

Data were analyzed by a research team with expertise in palliative care, psychology, critical care, and qualitative methods. Fifteen family caregivers of 15 children participated. Children were a median of 8 years old (interquartile range 4-11.5) and 80% (n = 12) had congenital/genetic conditions. Parent/family caregivers were a median age of 39 years old (interquartile range 36-42.5); 20% (n = 3) self-identified as fathers and 47% (n = 7) as having to a minority racial background. Parents discussed ongoing meaning-making that occurred through domains of comprehension and purpose, and themes of understanding of other people and the world around them. Subthemes focused on appreciation/acceptance, adaptability/accountability, valuing all lives, and learning/teaching about their child.

CONCLUSIONS:

Meaning-making may be an opportunity for support in the PICU among parents/family caregivers of children with SNI.
Asunto(s)

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Unidades de Cuidado Intensivo Pediátrico / Enfermedades del Sistema Nervioso Límite: Adult / Child / Humans Idioma: En Revista: Pediatrics Año: 2024 Tipo del documento: Article

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Unidades de Cuidado Intensivo Pediátrico / Enfermedades del Sistema Nervioso Límite: Adult / Child / Humans Idioma: En Revista: Pediatrics Año: 2024 Tipo del documento: Article
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