How to measure patient and family important outcomes in extremely preterm infants: A scoping review.
Acta Paediatr
; 113(6): 1228-1235, 2024 Jun.
Article
en En
| MEDLINE
| ID: mdl-38578009
ABSTRACT
AIM:
Parents of children born preterm have identified outcomes to be measured for audit and research at 18-24 months of age child well-being, quality of life/function, socio-emotional/behavioural outcomes, respiratory, feeding, sleeping, and caregiver mental health. The aim was to identify the best tools to measure these seven domains.METHODS:
Seven working groups completed literature reviews and evaluated potential tools to measure these outcomes in children aged 18-24 months. A group of experts and parents voted on the preferred tools in a workshop and by questionnaire. Consensus was 80% agreement.RESULTS:
Consensus was obtained for seven brief, inexpensive, parent friendly valid measures available in English or French for use in a minimum dataset and potential alternative measures for use in funded research.CONCLUSION:
Valid questionnaires and tools to measure parent-identified outcomes in young preterm children exist. This study will facilitate research and collection of data important to families.Palabras clave
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Recien Nacido Extremadamente Prematuro
Límite:
Humans
/
Infant
/
Newborn
Idioma:
En
Revista:
Acta Paediatr
Año:
2024
Tipo del documento:
Article
País de afiliación:
Canadá