Perceived and physiological strains of societal participation in people with multiple sclerosis: a real-time assessment study.
J Rehabil Med
; 56: jrm40838, 2024 Jun 24.
Article
en En
| MEDLINE
| ID: mdl-38910543
ABSTRACT
OBJECTIVE:
To examine the relationship between perceived and physiological strains of real-time societal participation in people with multiple sclerosis.DESIGN:
Observational study. SUBJECTS/PATIENTS 70 people with multiple sclerosis.METHODS:
Perceived and physiological strain of societal participation (10 participation-at-location and 9 transport domains) were measured in real time using the Whereabouts smartphone app and Fitbit over 7 consecutive days. Longitudinal relationships between perceived (1 not strenuous to 10 most strenuous) and physiological strains (heart rate reserve) were examined using mixed-model analyses. Type of event (participation-at-location or transport) was added as covariate, with further adjustments for fatigue and walking ability.RESULTS:
Median perceived strain, summarized for all societal participation domains, varied between 3 and 6 (range 1-10), whereas physiological strain varied between 18.5% and 33.2% heart rate reserve. Perceived strain (outcome) and physiological strain were not associated (ß -0.001, 95%CI -0.008; 0.005, with a 7-day longitudinal correlation coefficient of -0.001). Transport domains were perceived as less strenuous (ß -0.80, 95%CI -0.92; -0.68). Higher fatigue levels resulted in higher perceived strain (all societal participation domains) (ß 0.05, 95%CI 0.02; 0.08).CONCLUSION:
Societal participation resulted in low-to-moderate perceived and physiological strain. Perceived and physiological strain of societal participation were unrelated and should be considered different constructs in multiple sclerosis.
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Fatiga
/
Participación Social
/
Esclerosis Múltiple
Límite:
Adult
/
Female
/
Humans
/
Male
/
Middle aged
Idioma:
En
Revista:
J Rehabil Med
Asunto de la revista:
REABILITACAO
Año:
2024
Tipo del documento:
Article
País de afiliación:
Países Bajos
Pais de publicación:
Suecia