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Developing a conceptual, reproducible, rubric-based approach to consent and result disclosure for genetic testing by clinicians with minimal genetics background.
Ormond, Kelly E; Hallquist, Miranda L G; Buchanan, Adam H; Dondanville, Danielle; Cho, Mildred K; Smith, Maureen; Roche, Myra; Brothers, Kyle B; Coughlin, Curtis R; Hercher, Laura; Hudgins, Louanne; Jamal, Seema; Levy, Howard P; Raskin, Misha; Stosic, Melissa; Uhlmann, Wendy; Wain, Karen E; Currey, Erin; Faucett, W Andrew.
Affiliation
  • Ormond KE; Department of Genetics and Stanford Center for Biomedical Ethics, Stanford University School of Medicine, Stanford, California, USA. kormond@stanford.edu.
  • Hallquist MLG; Geisinger, 100 North Academy Avenue, Danville, Pennsylvania, 17822, USA.
  • Buchanan AH; Geisinger, 100 North Academy Avenue, Danville, Pennsylvania, 17822, USA.
  • Dondanville D; Department of Genetics, Stanford University School of Medicine, Stanford, California, USA.
  • Cho MK; Stanford Center for Biomedical Ethics, Stanford University School of Medicine, Stanford, California, USA.
  • Smith M; Northwestern University, Evanston, Illinois, USA.
  • Roche M; Departments of Pediatrics and Genetics, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
  • Brothers KB; Department of Pediatrics, University of Louisville, Louisville, Kentucky, USA.
  • Coughlin CR; Department of Pediatrics, Center for Bioethics and Humanities, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.
  • Hercher L; Sarah Lawrence College, Bronxville, New York, USA.
  • Hudgins L; Division of Medical Genetics, Department of Pediatrics, Stanford University School of Medicine, Stanford, California, USA.
  • Jamal S; GeneDx, 207 Perry Pkwy, Gaithersburg, Maryland, 20877, USA.
  • Levy HP; Johns Hopkins University, Baltimore, Maryland, USA.
  • Raskin M; Geisinger, 100 North Academy Avenue, Danville, Pennsylvania, 17822, USA.
  • Stosic M; Helix, 3505 West Sam Houston Parkway North Suite 400, Houston, Texas, 77043, USA.
  • Uhlmann W; Columbia University, New York, New York, USA.
  • Wain KE; University of Michigan, Ann Arbor, Michigan, USA.
  • Currey E; Geisinger, 100 North Academy Avenue, Danville, Pennsylvania, 17822, USA.
  • Faucett WA; National Human Genome Research Institute, NIH, Bethesda, Maryland, USA.
Genet Med ; 21(3): 727-735, 2019 03.
Article in En | MEDLINE | ID: mdl-29976988
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Health Personnel / Disclosure / Genetic Counseling Type of study: Guideline / Prognostic_studies / Qualitative_research Aspects: Ethics Limits: Adult / Female / Humans / Male Language: En Journal: Genet Med Journal subject: GENETICA MEDICA Year: 2019 Document type: Article Affiliation country: Country of publication:
Fulltext
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Health Personnel / Disclosure / Genetic Counseling Type of study: Guideline / Prognostic_studies / Qualitative_research Aspects: Ethics Limits: Adult / Female / Humans / Male Language: En Journal: Genet Med Journal subject: GENETICA MEDICA Year: 2019 Document type: Article Affiliation country: Country of publication: