Recruiting diversity where it exists: The Alabama Genomic Health Initiative.
J Genet Couns
; 29(3): 471-478, 2020 06.
Article
in En
| MEDLINE
| ID: mdl-32220047
Lack of diversity among genomic research participants results in disparities in benefits from genetic testing. To address this, the Alabama Genomic Health Initiative employed community engagement strategies to recruit diverse populations where they lived. In this paper, we describe our engagement techniques and recruitment strategies, which resulted in significant improvement in representation of African American participants. While African American participation has not reached the representation of this community as a percentage of Alabama's overall population (26%-27%), we have achieved an overall representation exceeding 20% for African Americans. We believe this demonstrates the value of engagement and recruitment where diverse populations reside.
Key words
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Black or African American
/
Genome, Human
/
Cultural Diversity
Aspects:
Determinantes_sociais_saude
Limits:
Humans
Country/Region as subject:
America do norte
Language:
En
Journal:
J Genet Couns
Journal subject:
GENETICA MEDICA
Year:
2020
Document type:
Article
Affiliation country:
Country of publication: