[Perceptions of cystic fibrosis patients, patient relatives and physicians: barriers or motivations to lung transplantation]. / Motivations et freins à la greffe chez patients, aidants et médecins dans la mucoviscidose.
Rev Mal Respir
; 31(3): 237-47, 2014 Mar.
Article
de Fr
| MEDLINE
| ID: mdl-24680115
ABSTRACT
INTRODUCTION:
The aims of this study are to describe qualitatively the perceptions of three groups involved in the cystic fibrosis transplant decision, looking for similarities and differences between groups, and to identify those that act as motivations or barriers to transplantation.METHODS:
Thirty patients, 26 patient relatives and 27 physicians were interviewed, and concept maps were constructed from those interviews. Their degree of transplant acceptance at the time of the interview was measured.RESULTS:
There were motivations and barriers in the pre-, peri- and post-transplant period. Analysis revealed similar perceptions regarding the risks and benefits of transplantation, but also different perceptions in the specific concerns of each group. Patients and patient relatives expressed many questions and fears in their concept maps, and physicians expressed difficulties.CONCLUSIONS:
This study highlights the value of better understanding the perceptions of patients, relatives and physicians, in order to remove some of the barriers to transplantation. It also demonstrates the benefits of education and support activities for patients and patient relatives prior to transplantation, and continuing education and supervision for physicians.Mots clés
Texte intégral:
1
Collection:
01-internacional
Base de données:
MEDLINE
Sujet principal:
Attitude envers la santé
/
Transplantation pulmonaire
/
Mucoviscidose
/
Prise de décision
Type d'étude:
Prognostic_studies
/
Qualitative_research
Aspects:
Determinantes_sociais_saude
Limites:
Adolescent
/
Adult
/
Female
/
Humans
/
Male
/
Middle aged
Langue:
Fr
Journal:
Rev Mal Respir
Année:
2014
Type de document:
Article