Caregiver priorities for endpoints to evaluate treatments for Prader-Willi syndrome: a best-worst scaling.

Tsai, Jui-Hua; Scheimann, Ann O; McCandless, Shawn E; Strong, Theresa V; Bridges, John F P

Tsai, Jui-Hua; Scheimann, Ann O; McCandless, Shawn E; Strong, Theresa V; Bridges, John F P.

Affiliation

Tsai JH; a Health Policy and Management Department, Johns Hopkins Bloomberg School of Public Health , Baltimore , MD , USA.
Scheimann AO; b Division of Pediatric Gastroenterology and Nutrition , Johns Hopkins Hospital , Baltimore , MD , USA.
McCandless SE; c Department of Pediatrics, University of Colorado Denver School of Medicine and Children's Hospital Colorado , Aurora , CO , USA.
Strong TV; d Foundation for Prader-Willi Research (FPWR) , Walnut , CA , USA.
Bridges JFP; e Department of Biomedical Informatics , The Ohio State University College of Medicine , Columbus , OH , USA.

J Med Econ ; 21(12): 1230-1237, 2018 Dec.

Article de En | MEDLINE | ID: mdl-30256699

Sujet(s)
Mots clés

*C99; C89; Patients' perspectives; Prader-Willi Syndrome; bestworst scaling; endpoint prioritization; hyperphagia; patients' preferences; rare disease

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Texte intégral: 1 Collection: 01-internacional Base de données: MEDLINE Sujet principal: Syndrome de Prader-Willi / Aidants / Détermination du point final / Préférence des patients Type d'étude: Prognostic_studies Limites: Adolescent / Adult / Aged / Aged80 / Child / Child, preschool / Female / Humans / Male / Middle aged Langue: En Journal: J Med Econ Sujet du journal: SERVICOS DE SAUDE Année: 2018 Type de document: Article Pays d'affiliation: États-Unis d'Amérique Pays de publication: Royaume-Uni

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