Mobile Complex Care Plans to Enhance Parental Engagement for Children With Medical Complexity.
Clin Pediatr (Phila)
; 58(1): 34-41, 2019 01.
Article
de En
| MEDLINE
| ID: mdl-30295060
ABSTRACT
Care plans can reduce care fragmentation for children with medical complexity (CMC); however, implementation is challenging. Mobile health innovations could improve implementation. This mixed methods study's objectives were to (1) evaluate feasibility of mobile complex care plans (MCCPs) for CMC enrolled in a complex care program and (2) study MCCPs' impact on parent engagement, parent experience, and care coordination. MCCPs were individualized, updated quarterly, integrated within the electronic health record, and visible on parents' mobile devices via an online portal. In 1 year (September 1, 2016, to August 31, 2017), 94% of eligible patients (n = 47) received 162 MCCPs. Seventy-four percent of parents (n = 35) reviewed MCCPs online. Forty-six percent of these parents (n = 16) sent a follow-up message, and the care team responded within 8 hours (median time = 7.2 hours). In interviews, parents identified MCCPs as an important reference and communication tool. MCCPs for CMC in a complex care program were feasible, facilitated parental engagement, and delivered timely communication.
Mots clés
Texte intégral:
1
Collection:
01-internacional
Base de données:
MEDLINE
Sujet principal:
Parents
/
Planification des soins du patient
/
Maladie chronique
/
Prestations des soins de santé
/
Applications mobiles
Type d'étude:
Prognostic_studies
Aspects:
Determinantes_sociais_saude
Limites:
Child
/
Female
/
Humans
/
Male
Langue:
En
Journal:
Clin Pediatr (Phila)
Année:
2019
Type de document:
Article
Pays d'affiliation:
États-Unis d'Amérique