Informing a value care model: lessons from an integrated adult neurogenomics clinic.

McLean, Alison; Tchan, Michel; Devery, Sophie; Smyth, Renee; Shrestha, Rupendra; Kumar, Kishore R; Tomlinson, Susan; Tisch, Stephen; Wu, Kathy H C

McLean, Alison; Tchan, Michel; Devery, Sophie; Smyth, Renee; Shrestha, Rupendra; Kumar, Kishore R; Tomlinson, Susan; Tisch, Stephen; Wu, Kathy H C.

Affiliation

McLean A; St Vincent's Clinical School, UNSW, Sydney, New South Wales, Australia.
Tchan M; St Vincent's Clinical Genomics, St Vincent's Hospital, New South Wales, Sydney, Australia.
Devery S; St Vincent's Clinical Genomics, St Vincent's Hospital, New South Wales, Sydney, Australia.
Smyth R; Department of Genetic Medicine, Westmead Hospital, Sydney, New South Wales, Australia.
Shrestha R; Discipline of Genetic Medicine, University of Sydney, Sydney, New South Wales, Australia.
Kumar KR; St Vincent's Clinical Genomics, St Vincent's Hospital, New South Wales, Sydney, Australia.
Tomlinson S; St Vincent's Clinical Genomics, St Vincent's Hospital, New South Wales, Sydney, Australia.
Tisch S; Centre for Economic Impacts of Genomic Medicine, Macquarie University, Sydney, New South Wales, Australia.
Wu KHC; St Vincent's Clinical Genomics, St Vincent's Hospital, New South Wales, Sydney, Australia.

Intern Med J ; 53(12): 2198-2207, 2023 Dec.

Article de En | MEDLINE | ID: mdl-37092903

Sujet(s)
Mots clés

diagnostic odyssey; diagnostic yield; multidisciplinary clinic; neurogenetics; neurogenomics; patient-centred

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Texte intégral: 1 Collection: 01-internacional Base de données: MEDLINE Sujet principal: Dépistage génétique / Établissements de soins ambulatoires Type d'étude: Prognostic_studies Limites: Adult / Humans Langue: En Journal: Intern Med J Sujet du journal: MEDICINA INTERNA Année: 2023 Type de document: Article Pays d'affiliation: Australie

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