The effects of transitioning from immediate release to extended release cysteamine therapy in Norwegian patients with nephropathic cystinosis: a retrospective study.

Bjerre, Anna; Aase, Sonja Amdal; Radtke, Maria; Siva, Christian; Gudmundsdottir, Helga; Forsberg, Brita; Woldseth, Berit; Brackman, Damien

Bjerre, Anna; Aase, Sonja Amdal; Radtke, Maria; Siva, Christian; Gudmundsdottir, Helga; Forsberg, Brita; Woldseth, Berit; Brackman, Damien.

Affiliation

Bjerre A; Department for Specialised Paediatrics, Oslo University Hospital, Oslo, Norway. abjerre@ous-hf.no.
Aase SA; Institute of Clinical Medicine, University of Oslo, Oslo, Norway. abjerre@ous-hf.no.
Radtke M; Department of Paediatric and Adolescent Medicine, Stavanger University Hospital, Stavanger, Norway.
Siva C; Department of Nephrology, St Olav's University Hospital, Trondheim, Norway.
Gudmundsdottir H; Department of Clinical and Molecular Medicine, Norwegian University of Science and Technology, Trondheim, Norge.
Forsberg B; Paediatric Department, Vestfold Hospital, Tønsberg, Norway.
Woldseth B; Nephrology Department, Ullevål, Oslo University Hospital, Oslo, Norway.
Brackman D; Chiesi Global Rare Diseases, Nordics, Stockholm, Sweden.

Pediatr Nephrol ; 38(11): 3671-3679, 2023 11.

Article de En | MEDLINE | ID: mdl-37219641

Sujet(s)
Mots clés

Extended-release cysteamine; Growth; Immediate-release cysteamine; Kidney function; Lysosomal storage disease; Nephropathic cystinosis

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Texte intégral: 1 Collection: 01-internacional Base de données: MEDLINE Sujet principal: Cystinose / Syndrome de Fanconi Type d'étude: Observational_studies Limites: Adult / Child / Humans Langue: En Journal: Pediatr Nephrol Sujet du journal: NEFROLOGIA / PEDIATRIA Année: 2023 Type de document: Article Pays d'affiliation: Norvège Pays de publication: Allemagne

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