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Exploring Family Perspectives on a Group-Based Hands-on Advanced Carbohydrate Counting Education Program for Children and Adolescents with Type 1 Diabetes: A Qualitative Study.
Pedersen, Zandra Overgaard; Jacobsen, Sabine Schade; Ewers, Bettina; Grabowski, Dan.
Affiliation
  • Pedersen ZO; Steno Diabetes Center Copenhagen, Department of Diabetes Care, Copenhagen University Hospital-Steno Diabetes Center Copenhagen, Borgmester Ib Juuls Vej 83, 2730 Herlev, Denmark.
  • Jacobsen SS; Copenhagen Neuromuscular Center, Department of Neurology, Copenhagen University Hospital, Rigshospitalet, 2100 Copenhagen, Denmark.
  • Ewers B; Steno Diabetes Center Copenhagen, Department of Diabetes Care, Copenhagen University Hospital-Steno Diabetes Center Copenhagen, Borgmester Ib Juuls Vej 83, 2730 Herlev, Denmark.
  • Grabowski D; Steno Diabetes Center Copenhagen, Department of Diabetes Care, Copenhagen University Hospital-Steno Diabetes Center Copenhagen, Borgmester Ib Juuls Vej 83, 2730 Herlev, Denmark.
Nutrients ; 16(11)2024 May 25.
Article de En | MEDLINE | ID: mdl-38892551
ABSTRACT
The care needs of children and adolescents with type 1 diabetes and their families are frequently approached as if they were identical to those of adults, overlooking the distinct challenges young people may face. It has been stated that children and adolescents often find conventional conversations with diabetes specialists tiresome and unpleasant. The present study focuses on familial experiences of an advanced carbohydrate counting program tailored to children and adolescents. The data encompass semi-structured interviews with families who participated in a group-based child-centered advanced carbohydrate counting program. The analysis revealed five themes (1) peer-to-peer interaction is an essential determinant of sharing and learning; (2) illness perception significantly influences dietary intake; (3) normalization of diabetes in everyday life eases the disease burden; (4) repetition of dietary knowledge is important for retention; and (5) creating a safe and playful learning environment is crucial to engaging children and adolescents in their own treatment. The present findings suggest that it would be beneficial to explore and consider alternative teaching approaches that are adapted to a more interactive and engaging learning environment that is specifically tailored to children and adolescents. This entails moving away from traditional individual approaches.
Sujet(s)
Mots clés

Texte intégral: 1 Collection: 01-internacional Base de données: MEDLINE Sujet principal: Éducation du patient comme sujet / Recherche qualitative / Diabète de type 1 Limites: Adolescent / Adult / Child / Female / Humans / Male Langue: En Journal: Nutrients Année: 2024 Type de document: Article Pays d'affiliation: Danemark Pays de publication: Suisse

Texte intégral: 1 Collection: 01-internacional Base de données: MEDLINE Sujet principal: Éducation du patient comme sujet / Recherche qualitative / Diabète de type 1 Limites: Adolescent / Adult / Child / Female / Humans / Male Langue: En Journal: Nutrients Année: 2024 Type de document: Article Pays d'affiliation: Danemark Pays de publication: Suisse