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Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes: Rationale and design of the global EAS Familial Hypercholesterolaemia Studies Collaboration.
Vallejo-Vaz, Antonio J; Akram, Asif; Kondapally Seshasai, Sreenivasa Rao; Cole, Della; Watts, Gerald F; Hovingh, G Kees; Kastelein, John J P; Mata, Pedro; Raal, Frederick J; Santos, Raul D; Soran, Handrean; Freiberger, Tomas; Abifadel, Marianne; Aguilar-Salinas, Carlos A; Alnouri, Fahad; Alonso, Rodrigo; Al-Rasadi, Khalid; Banach, Maciej; Bogsrud, Martin P; Bourbon, Mafalda; Bruckert, Eric; Car, Josip; Ceska, Richard; Corral, Pablo; Descamps, Olivier; Dieplinger, Hans; Do, Can T; Durst, Ronen; Ezhov, Marat V; Fras, Zlatko; Gaita, Dan; Gaspar, Isabel M; Genest, Jaques; Harada-Shiba, Mariko; Jiang, Lixin; Kayikcioglu, Meral; Lam, Carolyn S P; Latkovskis, Gustavs; Laufs, Ulrich; Liberopoulos, Evangelos; Lin, Jie; Lin, Nan; Maher, Vincent; Majano, Nelson; Marais, A David; März, Winfried; Mirrakhimov, Erkin; Miserez, André R; Mitchenko, Olena; Nawawi, Hapizah.
Affiliation
  • Vallejo-Vaz AJ; Imperial Centre for Cardiovascular Disease Prevention (ICCP), School of Public Health, Imperial College London, London, UK. Electronic address: a.vallejo-vaz@imperial.ac.uk.
  • Akram A; Global eHealth Unit, School of Public Health, Imperial College London, London, UK; Centre for Population Health Sciences, Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore.
  • Kondapally Seshasai SR; Cardiovascular and Cell Sciences Research Institute, St George's, University of London, London, UK.
  • Cole D; Cardiovascular and Cell Sciences Research Institute, St George's, University of London, London, UK.
  • Watts GF; Cardiovascular Medicine, Royal Perth Hospital, University of Western Australia, Perth, Australia.
  • Hovingh GK; Department of Vascular Medicine, Academic Medical Centre, Amsterdam, The Netherlands.
  • Kastelein JJ; Department of Vascular Medicine, Academic Medical Centre, Amsterdam, The Netherlands.
  • Mata P; Fundación Hipercolesterolemia Familiar, Madrid, Spain.
  • Raal FJ; Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.
  • Santos RD; Heart Institute (InCor), University of São Paulo Medical School Hospital, São Paulo, Brazil.
  • Soran H; University Department of Medicine, Central Manchester University Hospitals, Manchester, UK.
  • Freiberger T; Centre for Cardiovascular Surgery and Transplantation, Brno, Czech Republic; Ceitec, Masaryk University, Brno, Czech Republic.
  • Abifadel M; Laboratory of Biochemistry and Molecular Therapeutics, Faculty of Pharmacy, Saint-Joseph University, Beirut, Lebanon.
  • Aguilar-Salinas CA; Instituto Nacional de Ciencias Médicas y Nutrición, Mexico City, Mexico.
  • Alnouri F; Cardiovascular Prevention and Rehabilitation Unit, Prince Sultan Cardiac Centre Riyadh, Riyadh, Saudi Arabia.
  • Alonso R; Lipid Clinic, Department of Nutrition, Clínica Las Condes, Santiago de Chile, Chile.
  • Al-Rasadi K; Sultan Qaboos University Hospital, Muscat, Oman.
  • Banach M; Department of Hypertension, Medical University of Lodz, Lodz, Poland.
  • Bogsrud MP; National Advisory Unit on Familial Hypercholesterolemia, Oslo University Hospital, Norway.
  • Bourbon M; Instituto Nacional de Saúde Doutor Ricardo Jorge and Biosystems & Integrative Sciences Institute (BioISI), Universidade de Lisboa, Portugal.
  • Bruckert E; Endocrinologie, métabolisme et prévention cardiovasculaire, Institut E3M et IHU cardiométabolique (ICAN), Hôpital Pitié-Salpêtrière, Paris, France.
  • Car J; Global eHealth Unit, School of Public Health, Imperial College London, London, UK; Centre for Population Health Sciences, Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore.
  • Ceska R; Charles University in Prague, Prague, Czech Republic.
  • Corral P; FASTA University, School of Medicine, Mar del Plata, Argentina.
  • Descamps O; Centres Hospitaliers Jolimont, Haine Saint-Paul, Belgium.
  • Dieplinger H; Austrian Atherosclerosis Society, c/o Division of Genetic Epidemiology, Medical University of Innsbruck, Innsbruck, Austria.
  • Do CT; Vietnam Heart Institute, Bach Mai Hospital, Hanoi, Viet Nam.
  • Durst R; Hadassah Hebrew University Medical Centre, Jerusalem, Israel.
  • Ezhov MV; Russian Cardiology Research and Production Centre, Moscow, Russia.
  • Fras Z; University Medical Centre Ljubljana, Division of Medicine, Preventive Cardiology Unit, Ljubljana, Slovenia; Medical Faculty, University of Ljubljana, Ljubljana, Slovenia.
  • Gaita D; Universitatea de Medicina si Farmacie Victor Babes din Timisoara, Romania.
  • Gaspar IM; Medical Genetics Department, Centro Hospitalar de Lisboa Ocidental and Genetics Laboratory, Lisbon Medical School, University of Lisbon, Portugal.
  • Genest J; McGill University, Montreal, Canada.
  • Harada-Shiba M; National Cerebral and Cardiovascular Centre Research Institute, Osaka, Japan.
  • Jiang L; National Clinical Research Centre of Cardiovascular Diseases, Fuwai Hospital, National Centre for Cardiovascular Diseases, Beijing, China.
  • Kayikcioglu M; Ege University Medical School, Department of Cardiology, Izmir, Turkey.
  • Lam CS; National Heart Centre Singapore and Duke-National University of Singapore, Singapore.
  • Latkovskis G; Research Institute of Cardiology and Regenerative Therapy, Faculty of Medicine, University of Latvia, Paul Stradins Clinical University Hospital, Riga, Latvia.
  • Laufs U; Universität des Saarlandes, Homburg, Germany.
  • Liberopoulos E; University of Ioannina Medical School, Ioannina, Greece.
  • Lin J; Beijing Institute of Heart, Lung and Blood Vessel Diseases, Beijing Anzhen Hospital, Capital Medical University, Beijing, China.
  • Lin N; Imperial Centre for Cardiovascular Disease Prevention (ICCP), School of Public Health, Imperial College London, London, UK.
  • Maher V; Tallaght Hospital, Ireland.
  • Majano N; Hospital Militar de Caracas, Caracas, Venezuela.
  • Marais AD; University of Cape Town and National Health Laboratory Service, South Africa.
  • März W; Medical Clinic V (Nephrology, Hypertensiology, Rheumatology, Endocrinology, Diabetology), Medical Faculty Mannheim, University of Heidelberg, Germany.
  • Mirrakhimov E; Kyrgyz State Medical Academy, Kyrgyzstan.
  • Miserez AR; Diagene GmbH, Research Institute, Reinach, Switzerland; Faculty of Medicine, University of Basel, Basel, Switzerland.
  • Mitchenko O; Dyslipidaemia Department, Institute of Cardiology AMS of Ukraine, Ukraine.
  • Nawawi H; Institute of Pathology, Laboratory and Forensic Medicine (I-PPerForM) and Faculty of Medicine, Universiti Teknologi MARA, Malaysia.
Atheroscler Suppl ; 22: 1-32, 2016 Dec.
Article in En | MEDLINE | ID: mdl-27939304
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Research Design / Registries / Delivery of Health Care, Integrated / Professional Practice Gaps / Hyperlipoproteinemia Type II / International Cooperation Type of study: Clinical_trials / Diagnostic_studies / Guideline Limits: Humans Language: En Journal: Atheroscler Suppl Journal subject: ANGIOLOGIA Year: 2016 Document type: Article Country of publication:
Fulltext
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Research Design / Registries / Delivery of Health Care, Integrated / Professional Practice Gaps / Hyperlipoproteinemia Type II / International Cooperation Type of study: Clinical_trials / Diagnostic_studies / Guideline Limits: Humans Language: En Journal: Atheroscler Suppl Journal subject: ANGIOLOGIA Year: 2016 Document type: Article Country of publication: