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Quality of Life of Patients with Wiskott Aldrich Syndrome and X-Linked Thrombocytopenia: a Study of the Primary Immune Deficiency Consortium (PIDTC), Immune Deficiency Foundation, and the Wiskott-Aldrich Foundation.
Shah, Ami J; Sokolic, Robert; Logan, Brent; Yin, Ziyan; Iyengar, Sumathi; Scalchunes, Chris; Mangurian, Christina; Albert, Michael; Cowan, Morton J.
Affiliation
  • Shah AJ; Division of Stem Cell Transplantation and Regenerative Medicine, Lucille Packard Children Hospital, Stanford School of Medicine, Stanford, USA. Ashah5@stanford.edu.
  • Sokolic R; Lifespan Cancer Institute, Alpert Medical School of Brown University, Providence, USA.
  • Logan B; Division of Biostatistics, Medical College of Wisconsin, Milwaukee, USA.
  • Yin Z; Division of Biostatistics, Medical College of Wisconsin, Milwaukee, USA.
  • Iyengar S; Wiskott-Aldrich Foundation, Smyrna, USA.
  • Scalchunes C; Immune Deficiency Foundation, Towson, USA.
  • Mangurian C; Department of Psychiatry, University of California-San Francisco, San Francisco, USA.
  • Albert M; Hauner University Children's Hospital, Ludwig-Maximilians Universitat Munich Germany, Munich, Germany.
  • Cowan MJ; Division of Allergy, Immunology and Blood and Marrow Transplantation, Benioff Children's Hospital, University of California-San Francisco, San Francisco, USA.
J Clin Immunol ; 39(8): 786-794, 2019 11.
Article in En | MEDLINE | ID: mdl-31620947

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Parents / Quality of Life / Thrombocytopenia / Wiskott-Aldrich Syndrome / Genetic Diseases, X-Linked / Patient Reported Outcome Measures Type of study: Prognostic_studies / Qualitative_research Aspects: Patient_preference Limits: Adolescent / Adult / Child / Child, preschool / Humans / Male Language: En Journal: J Clin Immunol Year: 2019 Document type: Article Affiliation country: Country of publication:

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Parents / Quality of Life / Thrombocytopenia / Wiskott-Aldrich Syndrome / Genetic Diseases, X-Linked / Patient Reported Outcome Measures Type of study: Prognostic_studies / Qualitative_research Aspects: Patient_preference Limits: Adolescent / Adult / Child / Child, preschool / Humans / Male Language: En Journal: J Clin Immunol Year: 2019 Document type: Article Affiliation country: Country of publication: