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Caregiver Burden Due to Pulmonary Exacerbations in Patients with Cystic Fibrosis.
Suthoff, Ellison; Mainz, Jochen G; Cox, Desmond W; Thorat, Teja; Grossoehme, Daniel H; Fridman, Moshe; Sawicki, Gregory S; Rosenfeld, Margaret.
Affiliation
  • Suthoff E; Vertex Pharmaceuticals Incorporated, Boston, MA.
  • Mainz JG; Department of Pediatrics, Pediatric Pulmonology, Jena University Hospital, Jena, Germany; Pediatric Pulmonology and Cystic Fibrosis, Brandenburg Medical School, University Hospital, Brandenburg, Germany.
  • Cox DW; Respiratory Department, Our Lady's Children's Hospital, Crumlin, Dublin, Ireland.
  • Thorat T; Vertex Pharmaceuticals Incorporated, Boston, MA.
  • Grossoehme DH; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH; Division of Pulmonary Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH.
  • Fridman M; AMF Consulting, Los Angeles, CA.
  • Sawicki GS; Division of Pulmonary Medicine, Boston Children's Hospital, Boston, MA.
  • Rosenfeld M; Division of Pulmonary and Sleep Medicine, Seattle Children's Hospital, Seattle, WA. Electronic address: margaret.rosenfeld@seattlechildrens.org.
J Pediatr ; 215: 164-171.e2, 2019 12.
Article in En | MEDLINE | ID: mdl-31761140
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Quality of Life / Adaptation, Psychological / Mental Health / Health Surveys / Caregivers / Cystic Fibrosis / Efficiency Type of study: Clinical_trials / Observational_studies / Qualitative_research / Risk_factors_studies Aspects: Patient_preference Limits: Adolescent / Adult / Aged / Child / Child, preschool / Humans / Middle aged Country/Region as subject: Europa Language: En Journal: J Pediatr Year: 2019 Document type: Article Affiliation country: Country of publication:
Fulltext
Add to My VHL
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Quality of Life / Adaptation, Psychological / Mental Health / Health Surveys / Caregivers / Cystic Fibrosis / Efficiency Type of study: Clinical_trials / Observational_studies / Qualitative_research / Risk_factors_studies Aspects: Patient_preference Limits: Adolescent / Adult / Aged / Child / Child, preschool / Humans / Middle aged Country/Region as subject: Europa Language: En Journal: J Pediatr Year: 2019 Document type: Article Affiliation country: Country of publication: