Your browser doesn't support javascript.
loading
Treatment needs and expectations for Fabry disease in France: development of a new Patient Needs Questionnaire.
Noël, Esther; Dussol, Bertrand; Lacombe, Didier; Bedreddine, Najya; Fouilhoux, Alain; Ronco, Pierre; Genevaz, Delphine; Bekri, Soumeya; Hagège, Albert; Dupuis-Siméon, Frédérique; Derrien Ansquer, Valérie; Germain, Dominique P; Lidove, Olivier.
Affiliation
  • Noël E; Strasbourg University Hospital, Strasbourg, France. esther.noel@chru-strasbourg.fr.
  • Dussol B; Conception Hospital, Marseille, France.
  • Lacombe D; Bordeaux University Hospital, INSERM U1211, Bordeaux University, Bordeaux, France.
  • Bedreddine N; Association des Patients de la Maladie de Fabry (APMF), Marsannay la Côte, France.
  • Fouilhoux A; Lyon University Hospital - Lyon Civil Hospital, Lyon, France.
  • Ronco P; Tenon Hospital, Paris, France.
  • Genevaz D; Vaincre les Maladies Lysosomales (VML), Massy, France.
  • Bekri S; Rouen University Hospital, Rouen, France.
  • Hagège A; Georges Pompidou European Hospital, Paris, France.
  • Dupuis-Siméon F; Amicus Therapeutics, La Défense, France.
  • Derrien Ansquer V; A+A Research, Lyon, France.
  • Germain DP; French Referral Center for Fabry disease, Division of Medical Genetics and INSERM U1179, University of Versailles, Paris-Saclay University, Montigny, France.
  • Lidove O; La Croix St Simon Hospital, Paris, France.
Orphanet J Rare Dis ; 14(1): 284, 2019 12 04.
Article in En | MEDLINE | ID: mdl-31801581
Subject(s)
Key words
Fulltext
Add to My VHL
Print
XML
PubMed Links
Search on Google

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Fabry Disease Type of study: Guideline Aspects: Patient_preference Limits: Humans Country/Region as subject: Europa Language: En Journal: Orphanet J Rare Dis Journal subject: MEDICINA Year: 2019 Document type: Article Affiliation country: Country of publication:
Fulltext
Add to My VHL
Print
XML
PubMed Links
Search on Google

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Fabry Disease Type of study: Guideline Aspects: Patient_preference Limits: Humans Country/Region as subject: Europa Language: En Journal: Orphanet J Rare Dis Journal subject: MEDICINA Year: 2019 Document type: Article Affiliation country: Country of publication: