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Perceived well-being and mental health in haemophilia.
Negri, Luca; Buzzi, Andrea; Aru, Anna Brigida; Cannavò, Antonino; Castegnaro, Claudio; Fasulo, Maria Rosaria; Lassandro, Giuseppe; Rocino, Angiola; Santoro, Cristina; Sottilotta, Gianluca; Giordano, Paola; Mazzucconi, Maria Gabriella; Mura, Rosamaria; Peyvandi, Flora; Delle Fave, Antonella.
Affiliation
  • Negri L; Dipartimento di Fisiopatologia Medico-Chirurgica e dei Trapianti, Università degli Studi di Milano , Milano, Italy.
  • Buzzi A; Fondazione Paracelso ONLUS , Milano, Italy.
  • Aru AB; SC Oncoematologia Pediatrica e Patologia della Coagulazione, Ospedale Pediatrico Microcitemico "Antonio Cao" , Cagliari, Italy.
  • Cannavò A; Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico , Milano, Italy.
  • Castegnaro C; Fondazione Paracelso ONLUS , Milano, Italy.
  • Fasulo MR; Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico , Milano, Italy.
  • Lassandro G; Dipartimento di Scienze Biomediche ed Oncologia Umana - Sezione di Pediatria, Università degli Studi di Bari "Aldo Moro" , Bari, Italy.
  • Rocino A; UOC di Ematologia - Centro Emofilia e Trombosi, Ospedale Ascalesi - ASL NA1 , Napoli, Italy.
  • Santoro C; Dipartimento di Biotecnologie Cellulari ed Ematologia, Università degli Studi di Roma La Sapienza , Roma, Italy.
  • Sottilotta G; UOSD Microcitemie - Centro Emofilia - Servizio Emostasi e Trombosi, Grande Ospedale Metropolitano "Bianchi-Melacrino Morelli" , Reggio Calabria, Italy.
  • Giordano P; Dipartimento di Scienze Biomediche ed Oncologia Umana - Sezione di Pediatria, Università degli Studi di Bari "Aldo Moro" , Bari, Italy.
  • Mazzucconi MG; Dipartimento di Biotecnologie Cellulari ed Ematologia, Università degli Studi di Roma La Sapienza , Roma, Italy.
  • Mura R; SC Oncoematologia Pediatrica e Patologia della Coagulazione, Ospedale Pediatrico Microcitemico "Antonio Cao" , Cagliari, Italy.
  • Peyvandi F; Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico , Milano, Italy.
  • Delle Fave A; Dipartimento di Fisiopatologia Medico-Chirurgica e dei Trapianti, Università degli Studi di Milano , Milano, Italy.
Psychol Health Med ; 25(9): 1062-1072, 2020 10.
Article in En | MEDLINE | ID: mdl-31984755
The investigation of mental health among persons with haemophilia is mostly focused on negative and disease-related indicators. Literature however shows that psychosocial resources and optimal daily functioning can co-exist with chronic disease. The Dual Continua Model operationalizes positive mental health as 'flourishing', a condition comprising emotional, psychological, and social well-being dimensions. In the present study physical and mental health were comparatively assessed through positive and negative indicators in adults with haemophilia and a control group. Participants included 84 Italian persons with severe haemophilia (Mage = 43.44; SDage = 13.04) and 164 adults without history of chronic illness (Mage = 40.98; SDage = 12.26), who completed the Short Form Health Survey, the Positive and Negative Affect Schedule, and the Mental Health Continuum Short Form. MANOVA and post-hoc t-tests provided evidence of worse general health, lower negative affect and higher psychological well-being among participants with haemophilia compared with the control group. Moreover, the percentage of flourishing individuals was higher among participants with haemophilia. Results support previous evidence suggesting that a chronic disease does not prevent mental well-being attainment. The identification of assets and strengths allowing people with haemophilia to flourish can be fruitfully used to design resource-centered interventions.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Personal Satisfaction / Mental Health / Hemophilia A Type of study: Prognostic_studies / Qualitative_research Limits: Adult / Humans / Male / Middle aged Language: En Journal: Psychol Health Med Journal subject: MEDICINA / SERVICOS DE SAUDE Year: 2020 Document type: Article Affiliation country: Country of publication:

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Personal Satisfaction / Mental Health / Hemophilia A Type of study: Prognostic_studies / Qualitative_research Limits: Adult / Humans / Male / Middle aged Language: En Journal: Psychol Health Med Journal subject: MEDICINA / SERVICOS DE SAUDE Year: 2020 Document type: Article Affiliation country: Country of publication: