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Optimizing Recruitment of Black Adolescents into Behavioral Research: A Multi-Center Study.
Ellis, Deborah A; Rhind, Jillian; Carcone, April Idalski; Evans, Meredyth; Weissberg-Benchell, Jill; Buggs-Saxton, Colleen; Boucher-Berry, Claudia; Miller, Jennifer L; Al Wazeer, Mouhammad; Drossos, Tina; Dekelbab, Bassem.
Affiliation
  • Ellis DA; Department of Family Medicine and Public Health Sciences, Wayne State University School of Medicine.
  • Rhind J; Department of Family Medicine and Public Health Sciences, Wayne State University School of Medicine.
  • Carcone AI; Department of Family Medicine and Public Health Sciences, Wayne State University School of Medicine.
  • Evans M; Department of Psychiatry and Behavioral Health, Ann and Robert H. Lurie Children's Hospital and Northwestern Feinberg School of Medicine.
  • Weissberg-Benchell J; Department of Psychiatry and Behavioral Health, Ann and Robert H. Lurie Children's Hospital and Northwestern Feinberg School of Medicine.
  • Buggs-Saxton C; Department of Pediatrics, Wayne State University School of Medicine.
  • Boucher-Berry C; Department of Pediatric Endocrinology, University of Illinois Medical Center at Chicago.
  • Miller JL; Department of Pediatric Endocrinology, Ann and Robert Lurie Children's Hospital.
  • Al Wazeer M; Ascension St. John Hospital.
  • Drossos T; Department of Psychiatry and Behavioral Neurosciences, University of Chicago Medicine.
  • Dekelbab B; Department of Pediatric Endocrinology, Beaumont Children's Hospital.
J Pediatr Psychol ; 46(6): 611-620, 2021 07 20.
Article in En | MEDLINE | ID: mdl-33570144
OBJECTIVES: Adolescents of color are underrepresented in behavioral health research. Study aims were to quantify the amount and types of outreach effort needed to recruit young Black adolescents with type 1 diabetes and their primary caregiver into a clinical trial evaluating a parenting intervention and to determine if degree of recruitment difficulty was related to demographic, diabetes-related, or family characteristics. METHODS: Data were drawn from a multi-center clinical trial. Participants (N = 155) were recruited from seven pediatric diabetes clinics. Contact log data were used to quantify both number/type of contacts prior to study enrollment as well as length of time to enrollment. Families were coded as having expedited recruitment (ER) or prolonged recruitment (PR). Baseline study data were used to compare ER and PR families on sociodemographic factors, adolescent diabetes management and health status and family characteristics such as household organization and family conflict. RESULTS: Mean length of time to recruit was 6.6 months and mean number of recruitment contacts was 10.3. Thirty-nine percent of the sample were characterized as PR. These families required even higher levels of effort (mean of 9.9 months to recruit and 15.4 contacts). There were no significant between-group differences on any baseline variable for ER and PR families, with the exception of family income. CONCLUSIONS: Researchers need to make persistent efforts in order to successfully enroll adolescents of color and their caregivers into clinical trials. Social determinants of health such as family resources may differentiate families with prolonged recruitment within such samples.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Black or African American / Diabetes Mellitus, Type 1 Type of study: Clinical_trials Aspects: Determinantes_sociais_saude / Patient_preference Limits: Adolescent / Child / Humans Language: En Journal: J Pediatr Psychol Year: 2021 Document type: Article Country of publication:

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Black or African American / Diabetes Mellitus, Type 1 Type of study: Clinical_trials Aspects: Determinantes_sociais_saude / Patient_preference Limits: Adolescent / Child / Humans Language: En Journal: J Pediatr Psychol Year: 2021 Document type: Article Country of publication: