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Evidence of a disability paradox in patient-reported outcomes in haemophilia.
O'Hara, Jamie; Martin, Antony P; Nugent, Diane; Witkop, Michelle; Buckner, Tyler W; Skinner, Mark W; O'Mahony, Brian; Mulhern, Brendan; Morgan, George; Li, Nanxin; Sawyer, Eileen K.
Affiliation
  • O'Hara J; HCD Economics, Daresbury, UK.
  • Martin AP; Faculty of Health and Social Care, University of Chester, Chester, UK.
  • Nugent D; HCD Economics, Daresbury, UK.
  • Witkop M; Department of Pediatrics and Division of Hematology at CHOC Children's Hospital, Center for Inherited Blood Disorders, Orange, CA, USA.
  • Buckner TW; National Hemophilia Foundation, New York, NY, USA.
  • Skinner MW; Hemophilia and Thrombosis Center, University of Colorado School of Medicine, Aurora, CO, USA.
  • O'Mahony B; Institute for Policy Advancement, Ltd, Washington, DC, USA.
  • Mulhern B; McMaster University, Hamilton, ON, Canada.
  • Morgan G; Irish Haemophilia Society, Dublin, UK.
  • Li N; Trinity College, Dublin, UK.
  • Sawyer EK; Centre for Health Economics Research and Evaluation, University of Technology Sydney, Sydney, NSW, Australia.
Haemophilia ; 27(2): 245-252, 2021 Mar.
Article in En | MEDLINE | ID: mdl-33595148
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Quality of Life / Hemophilia A Type of study: Prognostic_studies Aspects: Patient_preference Limits: Humans Language: En Journal: Haemophilia Journal subject: HEMATOLOGIA Year: 2021 Document type: Article Country of publication:
Fulltext
Add to My VHL
Print
XML
PubMed Links
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Quality of Life / Hemophilia A Type of study: Prognostic_studies Aspects: Patient_preference Limits: Humans Language: En Journal: Haemophilia Journal subject: HEMATOLOGIA Year: 2021 Document type: Article Country of publication: