A comparison study of outcome measures for epidermolysis bullosa: Epidermolysis Bullosa Disease Activity and Scarring Index (EBDASI) and the Instrument for Scoring Clinical Outcomes of Research for Epidermolysis Bullosa (iscorEB).

Rogers, Clare L; Gibson, Matthew; Kern, Johannes S; Martin, Linda K; Robertson, Susan J; Daniel, Benjamin S; Su, John C; Murrell, Oliver G C; Feng, Grant; Murrell, Dedee F

Rogers, Clare L; Gibson, Matthew; Kern, Johannes S; Martin, Linda K; Robertson, Susan J; Daniel, Benjamin S; Su, John C; Murrell, Oliver G C; Feng, Grant; Murrell, Dedee F.

Affiliation

Rogers CL; Faculty of Medicine, University of New South Wales, Sydney, New South Wales, Australia.
Gibson M; Department of Dermatology, St George Hospital, Sydney, New South Wales, Australia.
Kern JS; Premier Specialists, Dermatology Trials Australia, Kogarah, New South Wales, Australia.
Martin LK; Faculty of Medicine, University of New South Wales, Sydney, New South Wales, Australia.
Robertson SJ; Department of Dermatology, St George Hospital, Sydney, New South Wales, Australia.
Daniel BS; Premier Specialists, Dermatology Trials Australia, Kogarah, New South Wales, Australia.
Su JC; Department of Dermatology, The Royal Melbourne Hospital, Parkville, Victoria, Australia.
Murrell OGC; Faculty of Medicine, Dentistry and Health Sciences, The University of Melbourne, Melbourne, Victoria, Australia.
Feng G; Sydney Children's Hospital, Randwick, New South Wales, Australia.
Murrell DF; Department of Dermatology, The Royal Melbourne Hospital, Parkville, Victoria, Australia.

JAAD Int ; 2: 134-152, 2021 Mar.

Article in En | MEDLINE | ID: mdl-34409361

Key words

BEBS, Birmingham Epidermolysis Bullosa Severity Score; BMD, bone mineral densitometry; DDEB, dominant dystrophic epidermolysis bullosa; EB, epidermolysis bullosa; EBDASI, Epidermolysis Bullosa Disease Activity and Scarring Index; EBS, epidermolysis bullosa simplex; Epidermolysis Bullosa Disease Activity and Scarring Index; ICC, intraclass correlation coefficient; Instrument for Scoring Clinical Outcomes of Research for Epidermolysis Bullosa; JEB, junctional epidermolysis bullosa; QOLEB, Quality of Life in Epidermolysis Bullosa score; QoL, quality of life; RDEB, recessive dystrophic epidermolysis bullosa; blistering skin disease; dermatology; epidermolysis bullosa; iscorEB, Instrument for Scoring Clinical Outcomes of Research for Epidermolysis Bullosa; outcome measure

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Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Observational_studies Aspects: Patient_preference Language: En Journal: JAAD Int Year: 2021 Document type: Article Affiliation country: Country of publication:

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